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The Judge Rotenberg Center
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What is the Judge
Rotenberg Center (JRC)?
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How does JRC
differ from other special needs residential schools?
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What is JRC's
policy regarding psychotropic medication?
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What is JRC's
policy regarding behavioral counseling?
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If there were no
JRC, what are the alternatives for the JRC students?
Positive Programming
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What categories of behaviors does JRC treat?
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What reward systems does JRC use?
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How are food rewards used in
JRC's behavioral treatment?
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How many of JRC
students can be treated effectively with positive-only programming (i.e.,
rewards and educational procedures)?
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How long is
positive-only programming tried before supplementing it with skin shock?
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Does JRC prepare its
students to receive high school diplomas?
Supplementary Aversives at JRC
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What is
aversive therapy using the GED?
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How is aversive
defined and which aversives are considered acceptable?
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What aversive does
JRC use and with what policies?
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What is GED and
how is it used?
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What
behaviors are aversives used to treat at JRC?
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How is skin shock used at JRC and what have the results
been?
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Is skin shock the same thing as electroconvulsive
shock?
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How effective is
skin-shock as an aversive?
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What percentage of JRC's population is treated
with supplemental skin shock?
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For those students who
receive skin-shock, how often is the procedure used?
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Does JRC's
skin shock have any negative side effects?
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What are the different treatment methods for using
aversives?
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What are behavior rehearsal
procedures and what support is there for them?
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What are
programmed opportunities?
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What is
negative reinforcement?
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What safeguards are in place
to prevent skin-shock from being misused at JRC?
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Sample Court
Authorized Treatment Plan
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Is it true
that some programs use "hidden aversives?"
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Why is there so
much opposition to the use of skin shock therapy?
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Do positive-only schools expel students who are
subsequently referred to JRC?
Common Objections regarding JRC's Use of Aversives
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Does JRC's GED skin
shock device cause burns?
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Do students who receive
skin-shock therapy ever "graduate" so that they no longer need this
treatment?
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Can JRC's students be
treated in other programs without the use of aversives?
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Contrast Skin Shock with Electroshock Therapy (ECT)
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Does JRC analyze the
causes (functions) of behaviors and base its treatment upon that analysis?
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Is it true that JRC
uses skin shock to punish minor behaviors?
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Is the GED sometimes
used when a student is restrained?
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Should skin-shock be
used only with lower functioning students?
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How come all other programs
manage without skin-shock?
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Is JRC out of the mainstream?
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Is the probate court process
to approve skin shock at JRC a sham?
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Is JRC's Human
Rights Committee controlled by JRC?
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Why has JRC not published on
the GED in peer reviewed journals?
Common Objections regarding Skin Shock
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Is skin shock overkill and are
Positive Behavior Support procedures sufficient?
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Why are not all the
other residential programs for special needs children using skin shock
aversives?
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You would not use skin shock on a
prisoner or a prisoner of war. Why use it on a handicapped child?
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What do you say to people
who say that the use of skin shock is inhumane?
Common Objections regarding Aversives in General
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Is there disagreement on
the effectiveness of aversives?
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Can aversives be avoided by
a skillful use of rewards?
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Can the same results
be achieved with positive-only procedures?
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Are aversives only temporary
in their effects?
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Does IDEA require the use
of positive behavior supports?
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Have aversives been
banned or restricted in other states?
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What organizations
support the right of parents to choose aversives?
Other Issues
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Is JRC too expensive?
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Is it true that five students
have died at JRC?
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What was the
controversy regarding JRC's use of the term psychologist?
JRC's Current Controversy with New York State
Education Department
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On June 9, 2006 the
New York State Education Department (NYSED) released a very negative
report on JRC. Why?
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Three MA
Agencies Review JRC and Find No Support for the Principle Accusations in
the June 9, 2006 NYSED Report
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Have the new NYSED regulations put a crimp in JRC's use
of aversives?
"You would not do this to a prisoner or a prisoner of war.
Why, then, should this be done to a handicapped child?"
JRC is a highly specialized and very
successful behavioral treatment program, not a prison. It is entirely
appropriate to treat persons in a treatment center differently from the
way they are treated in a prison. For example, it is perfectly legal
when hospitals inject handicapped children with haldol, thorazine or
other potent anti-psychotic medications when they are prescribed by a
psychiatrist; however, it would not be legal to inject prisoners with
these same medications as part of a person's prison sentence. Many of
these anti-psychotic medications are much more intrusive than JRC's
aversive procedures and have serious and sometimes permanent
side-effects. JRC's treatment has no serious side-effects and has a
record of treatment success for severe behavior disorders that far
exceeds that of anti-psychotic medications.
Society is responsible for providing
effective treatment and education to children with severe behavior
disorders to help them overcome their handicapping problematic
behaviors. This is particularly true when those behaviors are harming
the students' bodies and/or their future development. This
responsibility is recognized in the federal law that mandates school
systems to provide an appropriate education for all children, including
those whose handicaps take the form of behavior problems.
When children are given anti-psychotic
medications to treat their behavior disorders the only result is to drug
the children to the point of near-sedation. This can sometimes (but not
always) stop their severe aggressive and health dangerous behaviors but
it also severely dulls their minds, rendering them unable to learn. Such
drugs have never been approved for use with children, have known harmful
side effects and sometimes have unknown, harmful, permanent and
irreversible side effects that do not appear until years later.
By contrast, aversive therapy, when used as
a supplement to positive and educational programming, has no significant
harmful side effects, is an effective treatment that is often required
only temporarily, and works without clouding the student's mind and body
with harmful drugs. Aversive therapy, used in this way, is a recognized
professional treatment that can save, extend and enrich the lives of
many children with severe behavior disorders. Parents should have the
right to choose this form of treatment for their child if they think
that this is the most effective, least intrusive treatment available.
This is particularly true when a parent prefers a non-drug, behavioral
treatment to the common alternatives of warehousing, heavy psychotropic
medication, seclusion, restraint and takedowns.
A procedure is not inhumane simply because
it involves the application of something uncomfortable or painful.
Inoculations, dentistry, medications and surgery all involve procedures
that may be quite uncomfortable or painful. We judge those procedures to
be humane, however, because when one weighs the future benefits against
the current risks and intrusiveness, the future benefits normally far
outweigh the temporary pain and discomfort that is involved. Aversive
therapy needs to be seen in the same light. Its intrusiveness needs to
be weighed against its significant benefits in the same way.
Unfortunately, those who wish to ban
aversives appear to be unwilling to measure aversives in this way. They
are unwilling to weigh the benefits of aversives against their
intrusiveness. They prefer to simply oppose aversives in a dogmatic,
philosophical manner. Aversives, in their view, are just WRONG with a
capital "W." They prefer to see these children living in psychiatric
hospitals in a drug-induced stupor.
One reason for their unwillingness to apply
a risks/benefits analysis may be that aversives are still relatively new
as a treatment and have not been as widely accepted as have
inoculations, dentistry and surgery. JRC is one of the few programs in
the country that offers this form of therapy. In addition, many persons
are still confused as to the difference between the use of a temporary,
mild electric skin shock as a behavioral treatment to decelerate
specific problem behaviors, on the one hand, and electroconvulsive shock
therapy as a psychiatric procedure to induce brain seizures and treat
mental problems such as depression, on the other. They also seem to
think that JRC applies skin-shock to the students randomly and do not
understand that the skin-shock is only applied as an immediate response
to specifically targeted aggressive, self-abusive or other serious
problematic behaviors that are threatening the individuals' physical
well-being or seriously interfering with their education or access to
society.
The present lack of information and
understanding about the use of skin-shock aversives among the population
at large means that opposing the use of such aversives is currently more
or less "politically correct." When one goes to the emergency room with
a life-threatening problem, one wants the most effective, least
intrusive treatment possible, regardless of whether or not that
treatment is considered to be politically correct. In the same way, when
the parent of a handicapped child finds that his/her child has
life-threatening problematic behaviors, that parent should be able to
select the most effective, least intrusive behavioral treatment,
regardless of whether or not certain uninformed and dogmatic persons
consider the treatment to be politically incorrect or even "inhumane."
Usually the persons who oppose the use of
aversives do not have children with behaviors as severely problematic as
do those parents who wish to keep aversives available as a treatment
option. Usually the opponents of aversives do not have children who are
routinely rejected from, or even expelled from, treatment programs that
employ positive-only treatment procedures. For a better understanding of
what it is like to be a parent of a child with severe behavior problems
that cannot be effectively treated with drugs or positive-only
procedures, please see the group of letters from parents that are found
at
http://www.judgerc.org/parentletters.html.
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"Electric shock therapy used at JRC
sounds barbaric
-- like "One Flew Over the Cuckoo's Nest."
In a recent news paper article a New York
state official was quoted as saying something to the effect, "Electric shock
therapy [used at JRC] sounds barbaric -- like 'One Flew Over the Cuckoo's
Nest.'" This reflects a common confusion that exists in many people regarding
two very different treatment procedures.
Electroconvulsive
Therapy (ECT)
Electroconvulsive therapy, is a psychiatric
procedure used for individuals with severe depression, psychotic depressions,
intractable mania, or people who are not able to take anti-depressants. This
procedure involves putting a patient to sleep with a barbiturate and
administering a drug to temporarily paralyze the muscles so they do not
contract during the treatment. An electrode is then placed above one or both
of the temples and another in the middle of the forehead and a small electric
current is passed through the brain of an individual for approximately 1
second in order to cause a localized seizure that can last from 30 seconds to
more than a minute. As you can imagine this procedure is done as a last
resort and only under the direct supervision of trained medical professionals.
ECT is the type of therapy used in the movie "One Flew Over the Cuckoo's Nest,"
although it has improved dramatically in its administration, safety, and
effectiveness since the movie was released back in 1975.
Behavioral Skin Shock
Behavioral skin shock is sometimes added as a
supplement to a very common form of treatment referred to as behavior
modification, which is based on behavioral psychology. Behavior
modification in various forms is used every day by parents and teachers to
help children learn good behaviors and achieve in education. Simply telling a
child that he/she will earn a special reward if he/she stops tantruming or if
he/she earns a good grade, is a simple form of behavior modification. For
people who engage in life threatening forms of self-abuse and/or aggression
which have been resistant to all other forms of treatment such as psychotropic
medication and in-patient counseling, then safe forms of skin shock or other
aversive techniques such as time-out, can be added to a reward-based
behavioral treatment program. At JRC, for instance, the student is normally
weaned off of psychotropic medication before behavioral skin shock is
employed. It has been very successfully used at JRC as a last resort for the
treatment of case-hardened problem behaviors that have not responded
successfully to heavy and prolonged dosages of psychotropic drugs or other
treatment approaches.
The behavioral skin shock procedure employed
at JRC involves the passage of a relatively weak electric current through a
small portion of the skin of an arm or leg for two seconds. It is used as a
consequence for certain pre-defined major problem behaviors that have been
targeted for treatment as part of a behavior modification plan. It causes a
level of pain that has been compared to that of a bee sting. It is used as one
component of a behavior modification treatment plan for treating major problem
behaviors displayed by autistic children and children with other problem
behaviors.
The student is first given rewards for not
showing the problem behavior to be treated, rewards for engaging in behaviors
that are incompatible with the problem behavior, and educational procedures to
teach the student how to appropriately and acceptably obtain the things that
he/she might otherwise have to engage in problem behaviors in order to obtain.
Typically, a student is treated, using only these rewards and educational
procedures, for several months to a year before supplementary skin shock is
considered. If these rewards- and education-based procedures are not
sufficiently effective to treat the behaviors, behavioral skin shock the
parent is given the option of adding behavioral skin shock as a supplement to
that ongoing reward/educational program. At JRC, 50% of its population is
successfully treated with rewards and educational procedures alone, without
having to use the skin-shock procedure.
The purpose of using behavioral skin-shock is
to help decrease the frequency of certain target behaviors. Data on the
frequency of the behavior(s) in question are collected and charted to
measure and evaluate its effectiveness. The procedure is done under the
direction of a behavioral clinician.
At JRC, behavioral skin shock is a voluntary
procedure that is employed only at the option of a parent. Prior to using the
procedure, JRC obtains the written informed consent of the parent and the
individualized as well as prior approval of a Massachusetts Probate Court
judge. The procedure is incorporated into the individual's Individual
Education Plan and into a treatment plan that is approved by the Probate
Court. JRC has been licensed to use this treatment by the Massachusetts
Department of Mental Retardation and the Massachusetts Department of Early
Education and Care. JRC's program is also approved by the Massachusetts
Department of Education and is approved as an out-of-state placement for
children by the New York State Department of Education.
The procedure is safe and effective. It has no
side effects. Often it is only needed for a short period. The need for it
diminishes as the frequency of the problem behavior decreases. For many
students, this treatment has been life-saving. Many students at JRC have been
able to be "weaned" off of the treatment procedure and graduate from JRC to
live a normal and productive life. Parents of students at JRC whose children
have benefited from the procedure are strong supporters of the program.
Recently current and former JRC students, who had benefited in their own
treatment by the use of behavioral skin shock, testified movingly on its
effectiveness and value to their own lives before a committee of the
Massachusetts legislature.
To distinguish between these two procedures it
is helpful to refer to the first procedure as electro-convulsive therapy
and to the procedure employed at the Judge Rotenberg Center as behavioral
skin-shock, or aversion therapy.
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"The JRC students have to wear the GED device for the
rest of their lives, so what's the point?"
In many cases,
particularly for students who function cognitively at a medium or high
level, the GED is required only temporarily, to suppress the frequency
of major problem behaviors. Once those behaviors have been decreased in
frequency, the student is much more likely to display and be rewarded
for desired behaviors, and much more capable of receive instruction. The
new behaviors that the student is able to show, as a result, may now
begin to generate for him/her some of the same attention and other
satisfactions that he or she previously could obtain only by engaging in
problem behaviors.
As the student's behavior
improves in this way, JRC's clinicians arrange to "fade out" the use of
the GED in gradual steps. Numerous graduates of JRC have left JRC and
gone on to college and work environments and have never had to use the
GED again.
There are some
lower-functioning students, however, with whom it may be necessary to
keep the GED available over a long period of time. In such cases, the
GED tends to be needed only very rarely and its use is somewhat similar
in function and value to that of an artificial limb or a pair of
eyeglasses. With the GED, the student is able to enjoy a quality of life
that is far superior than that which the student would have had if the
GED were not to remain available.
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"...neither...Israel or his school has ever submitted data on the success of any of these therapies to peer review
journals..."
The use of skin shock as a
decelerative procedure for inappropriate behaviors is one of the most widely
published behavior modification techniques in the psychological literature.
Our own
bibliography for example contains 111 separate papers on the topic, almost
all of which are published in peer reviewed
journals.
The behavioral skin shock
device that JRC uses (called the Graduated Electronic Decelerator, or GED) is
simply a another device that administers a 2-second shock to the surface of
the skin. It was designed to be an improvement on the SIBIS device, which has
numerous publications in the professional peer-reviewed literature.
Dr. Israel
has written a paper that explains its advantages over the SIBIS device.
JRC's primary mission is
not the conduct and publication of peer-reviewed research, but the application
to education and treatment of basic principles and technological strategies
that are already well founded in the professional literature. Indeed, for JRC
to spend its funds on doing and publishing research would be a disallowed
expense under the Massachusetts rules for schools such as JRC.
Most practicing physicians
apply the results of research performed by research biologists, physiologists
and research physicians. Similarly, JRC is devoted to the practice of
behavioral treatment, rather than the conduct of the basic research that
practitioners rely on.
JRC has, however, made
available a
number of papers that
describe our treatment procedures, in great detail and that report the data we
have obtained. For example, our website includes papers that describe the
following aspects of our use of the GED skin shock device: 1.
Technical
features of the GED behavioral skin shock device
2.
Its success in
treating one or two of our most difficult clients
3.
Its effectiveness as compared with the SIBIS skin shock device
4. Its
overall effectiveness in treating the last 36
students who were authorized for its use.
Our website also contains
the following: 1. The full text of
14 professional papers,
several
of them from peer reviewed journals
dealing with electric shock 2.
A complete bibliography of 111 of
articles documenting the effectiveness of skin shock 3.
A copy of a summary of
the 1987 National Institute of Health Consensus Conference Report,
acknowledging that skin shock was a legitimate decelerative procedure with
professional support in the literature.
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"Aversives are only
temporary in their effect. When you stop using them, they lose their
effect. So why bother, if the behavior returns as soon as the procedure is
no longer used?"
This statement faults
aversives for failing to do something they were never intended to do –
i.e., to produce not only response reduction, but also long-term
generalization and maintenance. We should first note that many
educational and medical procedures do not produce long-term effects
that remain in place long after the procedure is removed. For example,
reward procedures produce an increase in the frequency of the behavior
that is rewarded; however, if the rewards are removed, the behavior will
return to the frequency it was at prior to the introduction of the
reward procedures, (unless some other rewards have come into play to
keep the behavior going). For another example, drugs cause certain
effects while they are taken. Those effects rarely, if ever, continue
long after the drug is discontinued.
The fact that a
procedure may be needed on a long term basis, does not mean it is
useless. Artificial limbs, eye glasses and hearing aids may be needed on
a long-term basis, but this does not make them useless. When a person
uses them, a major improvement in the person's quality of life becomes
possible. As a result, most persons consider that the benefits that
these prosthetic devices confer far outweighs the inconvenience involved
in wearing them. The same is true for the use of aversives with some
lower functioning self-abusive and self-mutilating children. Without
them, the child is often in danger of losing his or her life or of
suffering self-mutilation. With the occasional use of them, however,
lives and limbs can be saved and the student can have a decent quality
of life.
Click here to see proof in the form of before-and-after films and
photos.
Fortunately, JRC's
experience shows that in most cases the need of aversives gradually
diminishes over time, even in the case of such lower functioning
self-abusive children. In most cases fewer and fewer applications of the
aversives are required as time goes on. For evidence of this, see the
charts we show of students who were started on the GED at some point
during the period 2003-2005. These charts show that as time goes
on, the number of GED skin-shock applications gradually diminishes to
zero or near-zero.
Even though an aversive
may reduce a behavior only while the aversive is being applied, this is
still a very significant effect, because it creates a window of
opportunity for strengthening certain other behaviors which may produce
their own natural rewards and therefore keep going after the aversive is
removed. For example, consider the case of a student who has been
refusing to attend school or cooperate with a teacher, and has been
languishing at home or in a psychiatric hospital before coming to JRC.
This might, for example, be the case of a student who is so aggressive
that he fights all the time, and has been excluded from school because
of his aggressiveness. If he is enrolled at JRC, and aversives are used
to get him to attend school, stop fighting with others, and cooperate
with the teacher, the student may, for the first time in his life, begin
to acquire new skills in reading, math, self-care, vocational skills,
playing new games and sports, socialization, etc. When the student
acquires these new skills, he may begin to be able to do useful and
enjoyable things that were never before possible. These new skills, in
turn produce their own rewards and therefore may keep going even without
any help from aversives. In effect, the student's whole life can be
turned around in a positive direction. He or she acquires self-esteem,
pride in his accomplishments and hope and optimism for his future. His
parents become proud of his accomplishments and begin to enjoy his
company and his home visits for the first time ever. If one reads the
letters to the New York legislators and Board of Regents that the JRC
parents have written as part of their campaign to keep New York
legislators from banning aversives and the Board or Regents from
removing JRC from New York's approved list of out-of-state schools,
one sees the pattern that I have described here occurring over and over.
In other words,
aversives, even if they only produce behavior reduction while they are
employed, have an effect similar to training wheels on a bicycle. They
can play the role of a temporary support device that enables a student
to start acquiring behaviors that were impossible to acquire until the
excessive anti-social behaviors were reduced.
This pattern of a
student changing his entire orientation to life once aversives have
helped him control his excessive anti-social behaviors is particularly
found when aversives are employed with higher functioning students.
These students can be changed from students who are headed for a wasted,
warehoused life in mental hospitals or prisons into productive
taxpayers. This is why Deputy Commissioner Cort's objection to JRC's use
of aversives with higher functioning students, in her
memo to the Board of Regents is particularly unfortunate. To
hear some of our higher functioning students tell you how aversives have
helped them to turn their lives around,
please click here.
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"There is no need for
aversives because positive programming can successfully treat problem
behaviors."
There has
been controversy surrounding the use of aversive procedures for some time.
The most recent chapter in this controversy began in 1981 when an
organization called The Association for Persons with Severe Handicaps (now
called by its acronym TASH) adopted a resolution banning the use of all
aversive procedures. Creighton Newsom and Kimberly Kroeger have written a
chapter called Nonaversive Treatment
in Controversial Therapies for Developmental Disabilities in which
they trace the history, contributions and harm done by this movement over
the years. They write:
The nonaversive
movement has led directly to school and provider policies in many communities of
excessive consumer choice and "hands-off behavior support," policies that over
time can and have produced individuals who become increasingly self-injurious,
routinely damage their homes or classrooms, or intimidate and injure peers and
staff. In the name of treating such individuals with "respect and dignity," such
providers are condemning them to certain institutionalization or incarceration.
Examples of misguided policies occur frequently at meetings about adult clients'
problem behaviors in community settings, usually in the context of discharging
the client. At one such meeting recently the workshop supervisor mentioned that
their new behavior support policy classifies "telling a consumer not do to do
something they want to do" as aversive because there's this big push to give
people choices and let them do whatever they want to do regardless. The issue
under discussion was whether or not the client should be allowed to run out of
the workshop into a busy street. The group home manager stated, "We have no
consequences. If a person needs hands-on to control his behavior, he's not
appropriate for our program." As a result, unintended consequences of
excessive client choice and hands-off policies are often the increased use of
psychotropic drugs and the frequent use of hospital emergency rooms or
developmental centers to deal with crises."
During the early 1980's the leaders in the field of Positive Behavior Supports
managed to secure a large multi-year grant from the Department of Education
that is now a national network of Rehabilitation Research and Training Centers
on Positive Behavioral Support. Many of the professionals and advocates who
oppose the use of aversives call their field "Positive Behavior Supports"
(PBS). Positive Behavior Supports are sometimes cited as a desirable
alternative to punishment procedures such as the GED skin shock used at JRC.
The paper,
Positive Behavior Support for People With Developmental Disabilities,
[3]
published by the American Association on Mental Retardation in 1999, is the
most comprehensive review of the literature on Positive Behavior Supports that
has ever been done. The authors of the paper are among the most distinguished
names in the field of positive programming. The paper reports on a review of
216 published studies, in each of which positive programming was used, and
which appeared in 36 different journals.
The bottom line finding was that
positive
programming was effective in 50% of the cases.
Effective was defined as decreasing the frequency of the behavior by 90% from
its "baseline" level (the level it was at prior to the start of treatment).
This is commendable, but it raises the question, "What about the other 50% of
the cases in which the treatment does not work?" That is where programs such
as JRC come in. JRC serves the cases where positive programming alone fails to
treat behaviors effectively.
Even the
assertion that the positive programming in these studies was effective in 50%
of the cases probably gives an exaggerated impression of just how effective
the treatment really was, because:
-
As Dr. Foxx
has shown in his chapter entitled "Severe Aggressive and Self-Destructive
Behavior: The Myth of the Nonaversive Treatment of Severe Behavior,"
the types of behaviors that the Positive Behavior Support persons do their
studies on are generally nowhere near as severe as the case-hardened
self-abuse and aggression that JRC is required to treat.
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The standard of effectiveness used - reducing the problem behavior by 90%
from its baseline level -- is not really an adequate standard for clinical
work with dangerous behaviors. For example, suppose a student was engaging
in life-threatening head-banging at the rate of 1000 head bangs per day
prior to the treatment and this is reduced to only 100 head bangs per day as
a result of the treatment. This would meet the study's criterion of a 90%
reduction from baseline; however, from a clinical point of view it would not
be rated a success.
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Positive
Behavior Supports is not really a scientific discipline. It is a group of
persons who are ideologically committed to opposing the use of aversives and
supporting certain other related ideologies such as normalization,
inclusion, person-centered planning, etc. In a chapter entitled, "Positive
Behavior Support: A Paternalistic Utopian Delusion,"
by Dr. James Mulick and Eric Butter, the authors note that the field of
Positive Behavior Supports is a mixture of three sources: applied behavior
analysis (which is a science) plus the two ideologies of the normalization
movement in human services and what are called "person-centered values." The
authors summarize their findings as follows: ". . .whatever else it may be,
PBS[Positive Behavior Support] is not science, but rather a form of illusion
that leads to dangerously biased decision making."
Because of the ideological allegiance that PBS journals demand of both its
authors and reviewers, the quality of peer review that PBS articles receive
is not up to standards of the non-ideological journals in the mainstream
behavior analysis field.
A recent 2005
study[8]
by several prominent PBS practitioners surveyed the opinions of 134 experts in
the field of Positive Behavior Supports. The experts were asked what treatment
procedures they considered to be acceptable. Surprisingly, 10% of the Positive
Behavior Support experts considered contingent skin shock to be an acceptable
procedure. All of those who considered it to be acceptable did so because they
viewed it as "effective."
We at JRC really wish it
were true that there was a technology of positive-only interventions that was
so effective that JRC would not need to use its GED procedure any more. If
there were such a technology, JRC would certainly want to use it and stop
using the GED. After all, why would we want to risk the future of JRC every
single day, by using such a controversial procedure as the GED skin shock, if
there were a more politically correct and non-controversial way of treating
the same behaviors? Wouldn't we be dummies to be continuing to use the GED?
Unfortunately, a careful
look at the facilities and programs that profess to use positive behavior
supports to control behavior tends to reveal the following:
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Often, such programs
are just not dealing with the level of case-hardened problem behaviors that
JRC deals with. And when they do come across such students they sometimes
refer them to JRC!
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In cases where such
positive-only programs are dealing with students with difficult
behavior problems, they tend to be doing one or more of the following
things:
-
They may just
substitute a lot of extra staff to hover near the student at all times,
ready to jump in and prevent problem behaviors from occurring when they
start. But this is not treatment; it is more like guard duty and
warehousing.
-
They
may not be putting any demands on the student to work, study, or
cooperate. They may just let the student do nothing all day. The
philosophy is, "If he doesn't bother us, we won't bother him." The result,
again, is warehousing.
-
They may give the
student so much psychotropic medication that the individual is in a kind
of stupor, is sleepy and has little energy to do anything. Heavy
medication that produces that result is not real treatment. It is, again,
a kind of pernicious warehousing.
-
They may be using
aversives, but hiding them under nice-sounding names. Five staff members
grabbing the student and forcing him to the floor each time he/she is
aggressive is called a "reactive procedure" or "containment" or "required
relaxation," and is definitely not called a "punishment." Isolating the
student in a room alone as a consequence is called "cooling off" or "time
out" and is not recognized as the punishment that it often is. Grabbing
the student harshly on the shoulder or arm, and squeezing it hard, when
the student does something inappropriate is called "redirection" rather
than the punishing consequence that it really is. You are safer to have
your child in a program that calls a spade a spade and a punishment a
punishment.
JRC's professional staff
are fully familiar with the techniques that comprise the field of Positive
Behavior Supports. Those techniques are essentially the same positive
programming procedures that JRC employs when a student first enters JRC. In
fact, we know of no program that goes to greater lengths to create a powerful
set of positive procedures. Witness our Big Reward Store, the little reward
stores in many of our classrooms, the weekly Reward Afternoon, the reward
boxes in many of the classrooms, the two Contract Stores, the variety of
behavioral contracts that are used simultaneously, the computer based
educational system with self-instructional software, etc. It is only if and
when such positive and educative procedures are insufficiently effective, by
themselves, in decreasing problematic behaviors that JRC supplements them with aversives such as the GED skin shock.
Those professionals who
publish in the Journal of Positive Behavior Supports are largely the same
behavioral psychologists who have long been in philosophical opposition to the
use of aversives. Behavioral psychologists come in many different flavors.
Some of them, like many advocates, are simply unwilling to weigh the risks and
benefits of the use of aversives and reject their use on philosophical
grounds. Others simply realize that their professional life will be a lot
smoother if they do not go down the road of using aversives, even if they know
in their heart that a combination of rewards and effective aversives may be
the most efficient way to treat serious problem behaviors.
The use of aversives is
so controversial that JRC is just about the only program that uses them
openly. The controversy has also had an impact on what is published in the
journals. Very few articles are now published in the area of aversives and on
skin shock. JRC's treatment is so effective, powerful, and humane, however,
that we are loathe to give it up in favor of something more politically
correct. It has been around since the 1960's and it has enormous support in
the professional literature (111 papers in our bibliography for example). It
may not be the flavor of the month, but it works marvelously well and saves
and enriches the lives of our students.
Carr, E. G., Horner, R. H.,
Turnbull, A. P., Marquis, J. G., Magito McLaughlin, D., McAtee, M. L.,
Smith, C. E., Anderson Ryan, K., Ruef, M. B., & Doolabh, A. (1999).
Positive behavior support for people with developmental disabilities: A
research synthesis. Washington, DC: American Association on Mental
Retardation.
Return to top
How
are food rewards used in JRC's behavioral treatment?
First, let me point out that our
food programs, which will be explained below, are used with students who have
extremely dangerous, often life-threatening, or bodily-injurious behaviors.
B.S. is a case in point. Some of the problematic behaviors that he brought to
JRC were these: biting off parts of his tongue; biting his cheek to the point
of opening a hole in his cheek; refusing to eat or swallow his medication; and
ruminating (regurgitating food from his stomach) and the projectile vomiting
of this food at others. The biggest problem with the projectile vomiting is
that as a result of it, B.S. brought himself close to the point of starvation
through the loss of weight.
Behaviors such as those that B.S.
showed have sometimes proven to be resistant to all other forms of treatment
offered outside of JRC, such as drugs, educational procedures, counseling, and
medical treatment. For example, at one point we sent B.S. for two weeks to
Boston Children's Hospital to see if the physicians there could find any
medical solution to his life-threatening behavior problems. They could not.
The facts of B.S.'s case were summarized by the Massachusetts Supreme Judicial
Court in its opinion affirming the lower court's decision to approve continued
use of JRC treatment program. The opinion can be found at 424 Mass. 482
(1997).
A common behavioral tool for the
treatment of such problem behaviors is to make a "behavioral contract" with
the student in which, if he is able to show certain desired behaviors (e.g.,
not banging his head against hard objects) for a certain period of time, the
student earns a reward. For some low-functioning students, the usual rewards
that you or I might work to earn, such as money, good grades, etc., may not be
effective. B.S. is a case in point. For such a student the mealtime food may
be the most effective reward that one can offer.
When JRC employs mealtime food to
motivate the students to change their behaviors, the food is used under either
of two alternative treatment programs--the
Contingent Food Program (in which
all food missed through contracts is made up at the end of the day) or the
Specialized Food Program (in which
the make up procedure is more restrictive).
Neither of these programs can be used unless JRC obtains prior
informed consent by the parent, prior approval from a physician and prior
authorization by the Probate Court as part of an individualized substituted
judgment authorization.
Out of our 245 students we are
employing the Contingent Food Program with only 22 students (9%) and the
Specialized Food Program with only 3 students (1%).
When food is used as a reward,
under either the Contingent Food Program or the Specialized Food Program, the
student's breakfast, lunch and dinner are divided into "mini-meals" small
portions of food that are earned one at a time. Successive "behavioral
contracts" are then set for the student, in which, if he can go for a certain
period of time without showing some problem behavior, he can earn a mini-meal.
For example, we might set a 5 minute contract for not hitting one's head. At
the end of 5 minutes, and providing the student has not hit his head during
those 5 minutes, the student would earn one portion of his breakfast. After he
eats that portion a second 5 minute contract would be set. The student can
then earn that second portion of breakfast by going for another 5 minutes
without displaying the self-injurious behavior. And so on. These contracts
would continue to be set, one after another, throughout the morning. Lunch and
dinner would also be divided into mini-meals and handled in the same manner.
In effect, the contracts are carried out continuously throughout the day. In a
16-hour day there would be a large number of contracts set for the student,
the actual number depending on the length of the contract.
In order for these contracts to
be effective, the student must be prevented from obtaining food by any method
other than by passing his contract to not hit his head during the 5 minute
period. Obviously, if the student were allowed to eat all of his normal three
meals at the usual times, regardless of whether or not he was showing any
problem behaviors, he would not be motivated by food and he would have no
incentive to try to pass any of the contracts by stopping the banging of his
head. He would continue to bang his head.
If the student passes each of the
behavioral contracts that are set for him, he will earn all of what otherwise
would have been served to him at his breakfast, lunch and dinner meals. In
other words, he will earn 100% of the amount of calories that would have been
offered to him at those three meals.
If the student fails to "pass"
one or more of his contracts, he is not given the food portion(s) that is(are)
the potential reward(s) for that contract(s). Whether or not the food that was
missed, as a result of those failures to pass contracts, will be made up later
in the day depends on whether the student is on the
Contingent Food Program or the
Specialized Food Program.
The Contingent Food Program
At the end of the day, we offer
to students who are on the Contingent Food Program a make-up meal that is
composed of chicken and mashed potatoes with liver powder sprinkled on top and
that will make up all the calories that the student will have missed by not
passing one or more of his contracts earlier in the day. This make-up food is
deliberately intended to be an unattractive option, however, because we want
the student to be motivated to earn the portions of real mealtime food that
can be earned by passing the behavioral contracts.
Despite these procedures, we occasionally find one or two students who seem to
prefer the make-up food to the regular menu food that they can earn by passing
their contracts. They appear not to mind failing their contracts and then
eating one large meal at the end of the day. When this occurs, we cease using
this food program and, if we have the parent and court authorization to do so,
we switch to the use of the Specialized Food Program described below.
There are a variety of safeguards
that are in place before the Contingent Food Program can be employed,
including the following:
-
The procedures must be approved
by the parent (informed consent) prior to their use;
-
JRC's consulting physician
examines the students and must give medical clearance for use of this
procedure;
-
The procedures must approved,
prior to use, by a probate court as part of an individualized treatment plan
that is authorized for that student;
-
The student's daily caloric
requirements are determined by a registered dietician in consultation with
JRC's medical staff;
-
The student's menu is designed
by a nutritionist;
-
The number of calories consumed
by the student each day is recorded;
-
The students are examined
periodically by JRC's nursing staff; and
-
The students are weighed daily.
The Specialized Food Program
For students on the Specialized Food Program
(currently it is being used with only 3 out of our 245 students) we do not
offer make-up food to compensate for food that the student missed by failing
to pass his contracts unless he has eaten 25% or less of his normal daily
caloric target. If he has eaten 25% or less, he is offered make-up food to
bring him up to the 25% level. Normally this provision is never brought into
play for two reasons: (1) the typical student passes the vast majority of
his contracts during the day; and (2) if the student fails to pass a
significant number of his contracts, the clinician may shorten the length
of the contract period, thereby it easier for the student to pass the
contract.
The medical safeguards in place
for the Specialized Food Program include all of the safeguards for the
Contingent Food Program plus the following:
-
For
each student at JRC, the medical staff determines the student's ideal weight
based on the student's body frame and height. To do this, the medical staff
refers to standardized charts which provide ideal weights based on body
frame and height. The ideal weight range is defined as the range from 90% to
110% of the "ideal weight." All students are maintained at or above a so-called "red line" weight which is 87.5% of their ideal
weight that is,
2.5% below the lower boundary of the ideal weight range.
-
Baseline blood work is done for the student prior to the initiation of the
specialized food program;
-
JRC
conducts a urinalysis to test for positive ketones on every day that follows
a twenty-four-hour period when either of the following occurs: (a) the
student earned less than 80% of his/her recommended daily caloric intake;
(b) if a member of the JRC medical staff determines that such a test is
necessary;
-
The
student is offered unlimited amounts of fluids;
-
The
electrolyte content in the student's blood is measured prior to the time
that he or she enters the specialized food program, to measure the chemical
composition of the ions. The electrolyte content in the student's blood is
measured every 6 months or more frequently as needed. For example they might
be measured when there is a major change in the student's medical status;
-
The
student's vital signs are measured as needed, by the nursing staff. This
includes a measurement of the student's heart rate, respiratory rate and
blood pressure. This might be done, for example, when there is a major
change in the student's medical status;
-
The
nurse reports by telephone to JRC's consulting physician every other week
(or more often, as necessary) once the specialized food program is
instituted for the student, regarding the student's status. Based on
the report, the consulting physician determines whether an examination is
necessary, and if so, the examination is also documented in the student's
record;
-
JRC
forwards the status of the student's weight to the consulting physician,
each week; and
-
The
food program is suspended or otherwise appropriately altered if a student's
weight dips below the red line value.
We have been employing these food make-up
procedures for almost 20 years and have not experienced any problems with
their use. One of our clinicians has done a careful study of the
Specialized Food Program. He found that the average student on this programs
gains, rather than
loses, weight.
As noted, the students tend to pass most of their
contracts. If a student is having difficulty passing his contracts, the
clinician may shorten the duration of the contract to make
passage easier (e.g., he could, for example, diminish the period of the
contract from 5 minutes to 1 minute). I cannot recall a single case in which a
student passed so few of his contracts that we had to bring into play the
provisions of the Specialized Food Program that involve the need to bring a
student, through the provision of makeup food, to 25% of his normal daily
calories .
The overall purpose of these food
programs is to make sure that the student is adequately motivated to earn the
food that is used in the behavioral contracts. This in turn creates a very
effective reward which JRC has used quite successfully to eliminate dangerous
forms of health dangerous and aggressive behavior. These are often dangerous
behaviors that were resistant to all previous forms of treatment such as
psychotherapy and drugs. We regard the use of both of the Contingent Food
Program and the Specialized Food Program as less intrusive than the use of our
skin-shock punishment procedure. The more effective that we can make our
behavioral contracts, through the use of such food programs, the less often we
need to employ the skin-shock procedure. In other words, the behavioral
contracts, coupled with the two food programs, are part of our strategy to
minimize our need to rely on the use of the skin-shock procedure.
Return to top
"The program is too expensive"
JRC is a kind of
behavioral hospital and has many of the same costs that any hospital has in
order to function 24 hours, 7 days per week, 365 days per year. We pay the
highest level of wages to our direct care staff of any comparable program in
our area in order to ensure that we can have a carefully selected, well
trained and supervised treatment and education staff. We employ 1170 staff
members for 255 students and maintain 4 office buildings 48 residences, a
fleet of vans and trucks, etc. The physical plant of our buildings and
residences is unmatched in its beauty, decoration and cleanliness. We have 35
staff members whose only duty is to ensure quality control. For all of this,
our tuition is much less than the cost of keeping an individual in a
psychiatric facility and is about average for intensively staffed residential
treatment programs of our kind.
There are two ways in
which, although our tuition is substantial, placing a child with us can save a
school district money:
-
Because
our treatment is so effective, we have better control over our students'
behaviors than most programs have. As a result, we are able to dispense with
the costs of extra 1-1 staffing that many schools and programs of our kind
charge when they accept difficult-to-treat students. During the 2005 year we
calculated the amount of money we were able to save for the programs that
place children with us. The total savings were $783,288.
A table showing how this figure was calculated is
found here.
-
Many
students go through a succession of ineffective residential placements
before they get placed at JRC. If they had been placed with us at the
beginning of their placement history, our ability to accomplish rapid and
effective change in the students' behaviors could have saved many years of
costs of the prior ineffective residential placements. Recently we
calculated the savings that could have been accomplished for one of our
successful graduates of our GED treatment.
The table showing the savings is
found here.
Return to top
"Skin shock is cruel and inhumane."
The GED behavioral
skin shock treatment procedure is dramatically effective in saving lives and
in rapidly turning around the lives of our students so that they can be
happier, healthier and more productive. In some cases it enables them to
return to public school, to competitive job or to being able to live normally
in an independent fashion. The procedure involves 2 seconds of discomfort and
the average student receives one two-second application per week. There are
absolutely no negative side effects. The principal side effects are that the
student behaves better and better, makes more of his behavioral contracts,
enjoys more rewards, becomes happier and develops a better self-concept. What
is cruel or inhumane about that?
What is really cruel
and inhumane are the alternatives to the use of the GED skin-shock, which tend
to be these:
-
psychotropic
medication. For the students that are referred to JRC such medication
has not worked. If it had, the student would never have been referred to
JRC. If you fill a student with enough medication, he/she can become a kind
of drooling zombie, with little energy and with a tendency to sleep much of
the time. The medication may also have permanently disabling effects on the
body, including on the nervous system. To us at JRC, that is cruel and
inhumane. Why are the anti-aversive advocates so upset about a harmless
skin-shock but hardly upset at all at largely ineffective and permanently
injurious psychotropic medication?
-
manual and
mechanical restraint. Some problem behaviors can be controlled and
prevented by putting the student into continual manual or mechanical
restraint. To manually restrain a vigorous young man can take the efforts of
many staff members and is inevitably a dangerous exercise. Putting a student
in continuing restraints is much more cruel than changing his/her behavior
quickly with a powerful positive reward program that is supplemented with
occasional two-second skin shocks.
It is important to note that there are some behaviors that cannot be
prevented even with manual or mechanical restraint. For example, the
behavior of biting off parts of one's tongue, biting a hole through one's
cheek with one's teeth, refusing to swallow food or medication, breaking one's own arm, and rubbing a leg against the inside of a plaster cast until
the skin is infected, are all behaviors that cannot be controlled with
manual or mechanical restraint. They are, however behaviors that can be (and
have been, at JRC) successfully treated with the GED treatment program of
rewards supplemented with skin shock.
-
warehousing.
Another alternative that is used frequently is to simply not place any
demands on the student at all. Just leave the student alone, feed and house
him/her, but do not try to get the student to do anything that he/she does
not want to do. Don't try to teach the student new skills and don't try to
decrease the problem behaviors. This abdication of any responsibility to
provide education or treatment and is clearly inhumane, because it treats
the individual in some respects like a caged animal.
-
intense 1-1
staffing. A very popular alternative is to assign one or two persons to
stay close to the individual at all times, ready to jump in and prevent any
problem behaviors when they start to occur. This strategy may temporarily
prevent problems, but it is also an abdication of the responsibility to
provide education and treatment. Throwing a lot of staff into a room into
close proximity with a student who has major problem behaviors is not the
same as treating those behaviors so that they no longer are problematic.
There have always been
persons of good will and good intentions who are strongly opposed to aversives.
They oppose aversives with the same passion and mission as those who strongly
oppose the use of animals in research (animal rights advocates) and the
procedure of abortion. A notable characteristic of those who oppose aversives,
whom some have termed the "anti-aversive advozealots," is that they are
unwilling to evaluate aversives by scientifically weighing their pros and
cons, or by evaluating their benefits against their risks. They believe that
these practices, regardless of what practical benefits they may give to
individuals or to mankind, are simply Wrong (with a capital "W")
philosophically.
Even if one were to point out the fact that the use of aversives treatment
procedures, as a supplement to other reward procedures, have saved persons'
lives that otherwise would have been lost (something that is clearly true),
that would not convince such persons to allow aversives to be used.
Conversely, even if the removal of aversives leads to a child's death, that
would not be enough to convince them that there might be a legitimate place
for the careful, controlled judicious use of aversives in such severe cases.
In fact we had just such
a case at JRC. A severe self-abusive student who had
come to us in a wheelchair had, with the help of aversives, as a supplement to
his program that was otherwise overwhelmingly positive in nature, managed to
stop his scratching and even attend public high school in Attleboro Mass.
However, the anti-aversive advozealots managed to convince the young man's
mother to remove the student from our care and to allow her son to be
transferred to an anti-aversive service organization who placed the young man
in an apartment in Brooklyn that he shared with another student. (The story of
this young man, named James Velez, was told by reporter Sonny Kleinfeld on two
straight major front page articles in the New York Times.) Within about 9
months of James' departure from JRC, however, I was reading the obituary of
this young man in the same New York Times. He had scratched himself to death
(the scratching had led to blood poisoning and eventually, to paralysis).
Nonetheless the anti-aversive advozealots still claimed that they had
"liberated" him from JRC and to this day probably still believe that he
represented a shining example of the fact that handicapped persons can live a
normal life and do not have to be treated with aversives.
Return to top
"Aversives and the GED
skin-shock are overkill. Recent developments in the field
of Positive Behavior Supports show that even severe behaviors can be
successfully treated with positive programming only."
Positive programming is often
cited as an alternative to punishment procedures such as the GED skin shock
used at JRC. The paper, "Positive Behavior Support for People With
Developmental Disabilities,"
published by the American Association on Mental Retardation in 1999, is the
most comprehensive review of the literature on positive programming that has
ever been done. It is a review of 216 articles in which positive programming
was used, and which appeared in 36 different journals. The authors of the
review are among the most distinguished names in the field of positive
programming.
The basic finding of this paper,
however, was that positive programming was effective for only 50% of the
cases. The question is, "What about the other 50% of the cases that cannot
be treated successfully with positive programming?" Other treatment options
must be available that can reduce the frequency of dangerous behaviors to a
level where the individual is no longer a danger to him/herself or others.
Behavioral skin shock is a well established treatment that can accomplish this
goal.
At JRC, we employ all of the
available positive programming methods in an attempt to decelerate problem
behaviors. We believe that our positive only programming is stronger and more
varied than can be found in any other program in the country. Witness our big
reward store, contract stores, classroom reward stores, reward boxes in
classrooms and reward activities (such as field days). Positive only methods
are used continuously throughout treatment, even when supplementary aversives
are part of an individual's treatment plan.
In 2005 an article appeared in the
Journal of Positive Interventions -- a key journal of those who support
positive-only interventions reporting a survey that was taken among 134
persons who are considered to be experts in positive programming. These
experts were asked to evaluate the acceptability of a number of treatment
techniques. The paper
reported the surprising
result that 10% of these experts
in positive programming found the use of behavioral skin shock to be an
acceptable form of treatment.
What makes this result even
more
interesting is the fact
that the 134 experts were gathered from fields that would be the least likely
to support intrusive procedures. Indeed one of the authors has testified in
two of JRC's
court hearings against ever using contingent shock for anyone and is a member
of TASH, is an organization that would like to close our facility.
Carr, E. G., Horner, R. H., Turnbull, A. P., Marquis, J. G., Magito
McLaughlin, D., McAtee, M. L., Smith, C. E., Anderson Ryan, K., Ruef, M. B., &
Doolabh, A. (1999). Positive behavior support for people with developmental
disabilities: A research synthesis. Washington, DC: American
Association on Mental Retardation.
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"In 1997 the Individuals with Disabilities Education Act
(IDEA) was amended to explicitly require the
use of positive behavioral supports and services for students with
disabilities"
The above statement that IDEA "explicitly requires the use of positive
behavioral supports and services" implies that aversives are prohibited by
IDEA. However, that is a serious misrepresentation of what the IDEA really
says.
In a recent
book, Controversial Therapies for Developmental Disabilities,
James Mulick and Eric Butter wrote an excellent chapter entitled, "Positive
Behavior Support: A Paternalistic Utopian Delusion." They write that:
"PBS [Positive Behavior Support -- my insertion] leaders even managed to use
their inside status with the U.S. Department of Education to insert a vague
and somewhat ungrammatical reference to the following in the 1997
reauthorization of IDEA (Public Law 105-17, p.57):
(B) CONSIDERATION OF
SPECIAL FACTORS- The IEP Team shall:
(1)
in the case of a child whose behavior impedes his or her learning or that of
others, consider, when appropriate, strategies, including positive
behavioral interventions, strategies and supports [italics added] to
address that behavior (Public Law 105-17, p.57)
and later:
(C) REQUIREMENT WITH
RESPECT TO REGULAR EDUCATION TEACHER--
The regular education teacher of the child, as a member of the IEP Team,
shall, to the extent appropriate, participate in the development of the IEP
of the child, including the determination of appropriate positive
interventions and strategies [italics added] and the determination of
supplementary aids and services, program modifications, and support for
school personnel consistent with paragraph (1)(A)(iii). (Public Law 105-17,
p.57).
. . .There
is no other reference even vaguely related to PBS in the law."
Note that in section B, dealing with the IEP team, positive behavior supports
are not mandated. What is mandated is simply that the IEP team should consider
them. Also notice that the phrase "positive behavioral interventions,
strategies and supports" are said to be included in what are referred to
simply as "strategies," implying that there might be other types of strategies
to be considered as well. Also note that there is absolutely no prohibition
against the use of aversive therapy procedures.
Note that in section C, positive behavior supports again are not mandated. The
regular education teacher is simply to participate in determining the
"appropriate positive interventions and strategies." The regular education
teacher is also to participate in determining "supplementary aids and
services, program modifications, and support." Supplementary aversives could
easily be considered to be included in "supplementary aids and services,
program modifications, and support." Again, there is no prohibition against
aversive therapy procedures.
There is nothing problematic for JRC in the fact that the 1997 reauthorization
of the law encourages positive programming. JRC believes in positive
programming and has an unusually strong component of positive programming. JRC
tries positive programming first, usually for a substantial period of time,
before considering the adding of supplementary aversives. Fifty percent of
JRC's students are successfully treated with positive programming alone.
JRC received a very favorable
review after a 2 day visit by NYSED staff in September, 2005. No mention was
made in that report of any concerns that JRC was violating the IDEA due to its
use . Similarly, an extensive review of JRC was done by NYSED in 1999, at the
conclusion of which JRC continued to be fully approved. No mention was made in
the report associated with that visit, either, that JRC was in any violation
of the IDEA.
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"The GED skin shock
may be alright to use with lower functioning students but should not be used
with students who have higher levels of cognitive functioning."
JRC's belief is that if a treatment procedure is effective, JRC should make
it available to the parents of all of our students who wish it for their child
and not limit its availability to those who function at a low cognitive level.
To do so would be to discriminate against the higher functioning students.
The GED skin-shock procedure, when applied to higher functioning students is
even more effective than it is with lower functioning students. Dr. Israel,
JRC's Executive Director, reported this in a paper he presented at the 2002
annual convention of the Association for Behavior Analysis. The paper is
can be found
here.
As noted there, in some cases higher functioning students stop their
problematic behaviors as soon as they are informed that we have secured court
approval for the use of the GED, and we never actually have to make an
application. In other cases, the behavior decreases in frequency much faster
and more precipitously than it does when the GED is applied to lower
functioning students.
Higher functioning students sometimes even request that the GED skin shock be
added to their treatment programs. This is because they clearly see how much
it has helped other students who function at their level, and who have
obviously benefited once they started on the treatment. They see that other
students (who have started GED treatment) do one or more of the following
things: avoid being restrained; advance from spending time in one of our Small
Conference Rooms, or in one of our Alternative Learning Centers, to being able
to work in a regular classroom; earn more rewards; go on field trips; advance
to a higher level residence with fewer staff and more privileges; and
generally be happier and have a higher quality of life.
Higher functioning students are able to tell others how much it has benefited
them. The testimony of such students at a recent legislative hearing for an
anti-aversives bill in Massachusetts was extremely compelling. Two of the
higher functioning students who testified were former students who had
benefited from GED treatment while they were enrolled at JRC and who appeared
at the hearing voluntarily to help JRC deal with the proposed legislation.
Return to top
"there is extensive research and disagreement
as to the efficacy of the use of aversives."
This is not true. An event, when used as a consequence for behavior, is called
an aversive if it decreases the future frequency with which that
behavior occurs. If it does not, it is not even called an aversive. Aversives,
in other words, are by definition effective in decreasing the frequency of the
behaviors they are used to consequate.
Even supporters of nonaversive treatment acknowledge the effectiveness of
aversives when used to decrease the frequency of problem behaviors. Michaels,
Brown and Mirabella, in their important review article surveying what
procedures are acceptable to a group of nonaversive experts, all of whom were
strong supporters of nonaversive treatment, acknowledge that the professional
literature shows that both nonaversive and aversive treatments are effective.
"As the
literature base reveals, there is supportive literature demonstrating the
effectiveness of the full range of decelerative consequence-based procedures
(e.g., Ricketts, Goza, & Matese, 1992; Wiliams, Kirpatrick-Sanchez & Iwata,
1993), and literature that supports the use of alternative [nonaversive]
procedures (e.g., Horner et al., 1990; Jackson & Panyan, 2002; Koegel,
Koegel, & Dunlap, 1996). If the literature is available to support any
position, then likely other factors contribute to professionals' decisions
concerning the use of the procedures."
Critics of aversive procedures sometimes acknowledge that aversives are
effective when used to decrease the frequency of a behavior. But, they point
out, the behavior sometimes returns to its pre-treatment level when the
aversives are withdrawn from use. The problem with this argument is that it is
faulting aversives for something they were never intended to be able to do
"i.e., to continue to cause a behavior to be low in frequency long after they
are no longer used as consequences for behaviors. As I have pointed out in my
Letter to Bob Frank behavior tends to adjust to whatever the current
contingencies are in the individual's environment. Expecting an aversive
consequence to keep having its effect long after we have stopped using it is
to criticize aversives for something that we have no right to expect them to
do.
The same criticism can be made of positive rewards. They, too, can be said to
be temporary in their effect. They increase the frequency of a behavior when
they are used; however, when they are discontinued, we do not expect them to
keep having their accelerative effect long after we have stopped using them.
I have also pointed out in my letter to Bob Frank that letter that even
though aversives may be temporary in their effect, they nonetheless can create
a window of opportunity during which rewards and educative procedures can be
used to teach new skills. If those new skills produce their own rewarding
consequences and therefore keep going, then the aversives have played a very
important role in making permanent changes in the student's repertoire of
behaviors.
Crighton Newsom and Kimberly Kroeger make the same points in their review of
the nonaversive treatment movement: (bracketed material supplied)
The original
TASH [The Association for the Severely Handicapped] resolution [banning
aversives] was based in part on the board's belief that evidence for the
effectiveness of aversive interventions was 'questionable' and 'on the
observations among board members that these procedures were being both
abused and misused in a variety of settings that serve persons with
disabilities.' (Guess, 1990). However, even Guess own literature review
(Guess, Helmstetter, Turnbull & Knowlton, 1987) like those of other
reviewers, actually showed that punishment procedures were generally
effective in reducing behaviors. The evidence was 'questionable' only in the
sense that punishment was faulted for failing to do more than it was ever
intended to do, that is, produce not only response reduction but also
long-term maintenance and generalization. (There was, however, no
acknowledgment that reinforcement also does not automatically produce
maintenance and generalization of treatment gains.) The main issue was
actually the second mentioned, the misuse of punishment procedures. But
instead of addressing what is a regulatory, credentialing , training and
oversight problem with a proposal for better controls, the TASH board chose
to eliminate aversives as an option altogether.
Return to top
"How
come all the other [treatment centers] in the
country are able to manage without [the use of skin shock]?" (Question asked by Ed Carr, Ph.D.
Professor of Psychology SUNY Stony Brook, in an article about JRC in
People Magazine, April 17.
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Many of the programs Dr.
Carr refers to have handled their difficult-to-treat students without skin
shock in a simple way. They have referred them to JRC.
We have compiled a list of all prior placements of all of our current
students who are receiving treatment with the GED skin shock. An examination
of the list, which is shown
by
clicking here, shows the following:
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Students usually come
to JRC only after they have been tried in several other programs. The
average student has been in 3.23 other programs before being referred to
JRC. In one case a student was in 18 different programs before coming to
JRC. He was re-admitted to a few of those programs on multiple occasions.
So actually he had a total of 29 separate admissions before he was placed
at JRC. For a student-by-student analysis showing how many programs each
student was in before coming to JRC,
please
click here. Although students
sometime leave a program for reasons other than the program's lack of
effectiveness, in most cases if a program is serving a student
effectively, he will remain in that program.
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The programs listed
here include many well known programs that have reputations for not
using aversives.
Click here to view the list of these programs and number of
current GED students who attended each.
Click here to view
the same information given
here but displays it in alphabetical order by
name of program.
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On the recent CNN
program about JRC's treatment, psychiatrist Bennett Leventhal made the
following claim:
There are centers, for example, such as the
Kennedy Krieger Institute at Johns Hopkins which uses a positive
reinforcement center and in six to eight weeks has children reduce these
very behaviors. They disappear, the patients are discharged, and rarely
need to be continued with the treatments like -- and never need to use
aversives like shock treatment.
The information on
this page proves this to be false. Two of JRC
current GED students were treated at Kennedy Krieger before being placed
at J |