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To Whom It May Concern: In the school year prior to my son, Pauli’s arrival at JRC, he was in danger of failing most academic subjects. Pauli would become verbally oppositional, breaking or attempting to bend the rules whenever the opportunity arose. Pauli would claim that others were expecting too much from him, leading to failure and criticism. The school attempted to intervene by having Pauli repeat the 10th grade in a 12:1:1 classroom. This was ineffective as Pauli continued to refuse to comply with school rules. When he was not sleeping in class, he was speaking out of turn and becoming physically aggressive with the staff. Pauli reportedly would wander away from the group when transitioning and become extremely physical, running in the halls, running into the classroom, getting up from his seat and distracting other students. He would also become argumentative with peers and adults. These types of behaviors led to him being separated from his class for behavioral problems. Pauli was described at his last school as needing more than the average amount of “time-outs” with the crisis intervention staff. In peer interactions, he was subject to impulsive violent outbursts. Pauli would become verbally aggressive, silly, and make inappropriate sounds. He purposely completed assignments incorrectly to gain attention or avoid tasks. Pauli has historically had great difficulties interacting with his peers in an appropriate manner. He has a history of teasing peers with comments that are annoying or hurtful to them. Pauli would also perseverate on tasks or social issues that arose. He was often unavailable for instruction due to being withdrawn or self-absorbed. From 1/04 to 6/04, for a portion of each day, the principal worked with Pauli individually to keep him focused on academics and to prevent him from harming others. Unfortunately, Pauli still did not progress academically and his behavior continued to be aggressive and oppositional whenever he was not working with the principal. His behaviors were beginning to approach extreme levels when, on 9/29/04, Pauli was found to have two weapons on his person while at school – a box cutter and butterfly knife. He was flashing a knife in front of peers, threatening harm. This led to his immediate removal from Martin de Porres HS. Subsequently, he received Home Instruction for the remainder of the school year. Instruction was planned for Pauli for the summer prior to his JRC admission, but he refused to attend school, stating that the summer is “his time.” Since his admission to JRC, Pauli’s response to treatment has been variable. While he has demonstrated that he is capable of up to two weeks without significant inappropriate behavior, he has also exhibited significantly aggressive, dangerous, destructive, and disruptive episodes that have endangered his own safety as well as the safety of others. During several aggressive episodes, Pauli rushed at staff persons to charge, jump upon, and assault them. Pauli can be extremely disruptive. He often talks loudly about his intent to cause harm to others, flaunts his disregard for rules, attempts to escape and bend rules by lying and manipulating staff. He would play a primary role in provoking, agitating, and instigating other students to join in creating aggressive and dangerous situations (e.g., attacking staff members that are in the process of working with other students). Moreover, Pauli had participated in two episodes in which he and a group of other students coordinated an attack against staff. In both episodes, Pauli physically assaulted staff members while instigating other students to do the same. During behavioral episodes, he had not been able to be maintained in his regularly assigned classroom. He has required separation from his peers in a staff-supervised room where he has no access to other students. Pauli has also been suspended from attending school at the main facility of the Judge Rotenberg Center due to the high intensity and dangerousness of his aggression. Despite these interventions, Pauli has required emergency physical restraint, for aggressive or dangerous behaviors. Pauli’s academic progress has been significantly impeded as a result of the frequency and intensity of his inappropriate behaviors and the subsequent interventions needed to maintain safety. He has also required the use of transportation restraints on a regular basis between school and the residence to maintain safety due to threatening and dangerous behaviors exhibited on the bus and prior to transportation. Pauli’s treatment plan was approved on November 16, 2005 which included the use of the GED skin shock treatment. Prior to the GED, Pauli exhibited 6, 214 dangerous behaviors. Since the GED, Pauli has exhibited 7 behaviors. His treatment team has begun to fade the GED from his program and he is for the first time in a long time able to sit in a classroom and learn to his abilities. Pauli is happier because of the GED and what it has afforded him. The GED has given him a second chance that no other program has been able to give to him. He is attending school and getting good grades and has started a job with the training department in which he gives tours to all new staff members that want to work at JRC. Sincerely, |
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To Whom It May Concern: I, Melody Simpson, the mother of Christopher Simpson, am writing this letter to inform you about the services my son receives at the Judge Rotenberg Center. The school is located in Canton, Massachusetts. This is a school for children with mental illnesses. My son suffers from Paranoid Schizophrenia he is also mildly retarded. It is very difficult to raise Christopher at home. He started attending the Judge Rotenberg Center at age 15 years old. He is now 21 years old and still attending the Judge Rotenberg Center. The school is excellent school. If it wasn’t for the Judge Rotenberg Center, I wouldn’t be able to work. My son is a threat to himself also others. The Judge Rotenberg Center uses different methods to handle the children but none of the methods are life threatening or dangerous. The electric shock treatment is there for safety of my child. My son could explode into some bad episodes at times and could really hurt himself and others. So, if Albany bans this type of treatment, my son would be a real danger to himself and others. Also there are no school in the New York State that can accommodate my son and his mental illness. This is why he had to go to school out of state. I would appreciate if you would consider your decision on banning aversive therapy. Thank you, |
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To Whom It May Concern: My 13 old grandson, Terry Reynolds Jr. is one of the students attending Judge Rotenberg Educational Center (JRC) that has been given aversion therapy as a form of behavior modification, he is also amongst the majority of children who entered JRC with emotional disabilities, oppositional defiant disorder, behavior problems and severe aggressive episodes. Although he would be considered by definition, as “higher-functioning” his lack of ability to control and regulate his anger, his reluctance to submit to authority and his inability to stay focused put him not only in jeopardy of an education but, also there was a question of his safety and the safety of his peers. The medication he was required to take, to control some of these symptoms, unfortunately worked only temporarily but the side effects proved to be devastating. He was awake almost around-the-clock, he lost a great deal of weight, during the day he was lethargic and at night when the medication wore off- aggravation and paranoia set In so much so, that he stabbed and killed the family pet, who he felt was a threat to him. Terry was hospitalized in a pediatric mental hospital, where he was restrained, put in a strait jacket and placed in a padded room until he “calmed” down. 1 sought numerous therapists and psychiatrists and questioned the use and the long term effectiveness of the medication used to treat his condition. As far as his education, the New York City Board of Education could not find “suitable” placement for him here in the community. So I went in search of a school out-of-state that could offered a safe environment, an education, and hope for a figure for him so that he could live independently. Judge Rotenberg Center (JRC) was the only school I found that not only offered me these things but, they were open and honest with me about my expectations for Terry, the schools criteria which included the use of aversion therapy. J got a chance to witness personally the restraining methods used on one of the students, I also was given a chance to test the electric shock for myself. And although, at the time, I too questioned the effectiveness of using aversion therapy, I had no questions in my mind of the outcome that would be waiting for Terry with psychotropic drugs and mental hospitals. I cannot begin to tell you of my joy that Terry has proven to be a true success story. He has made slow but, steady progress in both his behavior and education. What was once a very depressed and emotionally drained little boy is now a young man who is confident, independent, and makes good decisions, most of the time. I cannot speak for all the students that come through Judge Rotenberg Center but, I can speak for Terry and his particular case. I would say that The New York State Board of Education would successfully handle and place 50% of the severe emotionally disturbed children that come into the system hut, Terry and other students at JRC are the other 50% who are the ones that have been deemed “uncontrollable”, “hostile” and truly hoarder line cases. These are students with exceptional needs which calls for exceptional measures. I don’t want Terry to be removed from the Judge Rotenberg Center but, it will mean the end of my grandson’s placement at JRC and the beginning of a very great hardship for Terry and our family. Sincerely yours, |
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To Whom It May Concern: My daughter April Penny has been put in this program so that she may receive the help she needs and so far she has been getting it. Sometimes she does have to be put in restraint because of her behavior and it hasn’t effected her negatively in anyway but has helped her. To my knowledge, this is the only program that will accept my daughter and due to her behavior I am unable to care for her myself I think it is important that she stays in tins program until it’s her time to leave so that she may continue to receive the help that she needs. Again, I think you should not close the JRC program because it’s the best place for my child and others. Sincerely yours, |
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To Whom It May Concern: As a concerned parent whose child attends this program, I am asking this committee not to allow this to happen. As a health care professional knowing the danger and the overwhelming side effects of psychotropic medication that our children may or have endured, should be of great concern for this nation. Studies are now revealing to the community, regarding the increase in suicidal rates among our youths who are overly medicated, as well as the brutal attacks towards their own family members or friends, leading to injury or death. Weight gain and obesity, are other dangerous side effect of these medications. We are all well aware of the statistical data regarding the increase rate of diabetes and hypertension that affect our children today; those who are medicated as well as those who are not. As a parent, I have seen my own child suffer physically and mentally from the side effects of prescribe psychotropic medication from age 5 to age 8. While my son was attending a private special educational school in New York, it was suggested by the school that he needed either an increase in his medication or change to a different type of medication, to control his behavior. This was a living nightmare to see my child who is always and still is a happy child became an emotional wreck each time he had to ingest this medication. With each change in his medication to control his behavior, along with the use of behavioral modification, my son became increasingly restless exhibiting more bizarre behaviors. As the school became more frustrated with my son’s behavior they then suggested the use of combining different types of psychotropic drugs to control his behavior. In the world of psychiatry this is known as “Cocktails.” With repeated failure of this program to meet my son’s needs I was once again brought back to the table to discuss my child’s future. It was recommended that they would assist me by the end of the year to seek other placement if thing did not work out. Having compassion for my child’s life, I had researched schools that would provide a safe an enriching environment, for him without the use of medication. I was informed about JRC’s program and its aversive treatment. Researching the positive effects of JRC methodology, I visited the program and was impressed with their consistent structural background, which included not only aversive treatment, but an individualized educational plan (IEP), tailored to meet each child needs, camera surveillance to monitor our children’s safety, a positive reward system in school and within the community, grooming and appearance training to enhance self-esteem, as well as a healthy, well-balance nutritional program. After viewing other in-state programs, all of which use psychotropic medication, my son was accepted into JRC at the age of 8. Knowing the nature of my child’s behaviors, behavior modification alone was not going to be an affective treatment for him. Prior to my son entering into the program, I had consented for JRC to have aversive procedures added to his program. Letting my child go to have someone else to nurture and care for him was very painful. What was more painful and distressing was receiving a phone call from a detective upon my arrival from Boston, that my son and several other children from the school in Queens that he attended was physically abused by a school attending staff. The courts did nothing to convict this person. Shortly after aversive treatments were implemented as a part of his program, I noted a positive change in my son’s behavior with no side effects. It is a pleasure to enjoy my visits with him without being stressed out. My son’s birthday was in March, and he just turned 14 years old and continues to be a student at JRC. As he continues to grow, those little milestones of development that we take for granted in our daily lives, are now seen as priceless. Without this program, my son would be out of control, overly medicated and obese. With each home visit, I as a parent continue to adhere to JRC aversive treatment program. With aversive treatments added to his program, I have seen tremendous results in his behavior and academics. He continues to progress rather than regress. JRC should be commended for their outstanding program. They have immeasurable compassion and great respect for our children’s lives. The use of aversive treatment is by no means hazardous to our children’s health or well-being. No side effects have been reported with the use of this program as opposed to the use of psychotropic medication. My wish is to have a drug-free child, to function to the best of his ability and be accepted into society, without being under the influence of medication. We are all searching for cures and the best methods that would help our children. Our parental right to choose is being threatened due to lack of knowledge or fear of the unknown regarding the positive affects of Aversive Treatments (GED) with (“NO” Side Affects) verses the negative effects of Electric Shock Therapy (EST) resulting in (Seizures, Convulsion, Permanent Memory Loss) all requiring medical attention, along with the over abusive use of psychotropic medication. Removing our children from this program resurfaces a parent’s worst nightmare and that is fear for the safety, health and well-being of their child. I deeply hope that this issue is reviewed carefully before making a drastic decision that would affect our children’s lives based on negative media. As a single parent, I had tried everything to help my son, holistically and medically. My baby is doing well at JRC. Respectfully, Cheryl Lloyd (Parent) |
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To Whom It May Concern: Our son, Robert Robinson, is a student at the Judge Rotenberg Center in Canton, Massachusetts. Robert carries multiple diagnosis including Intermittent Explosive Disorder, Psychosis, Mood Disorder, and ADHD. He had been in special education settings since a young age due to his behavior. These various programs were not able to accommodate our son’s needs. His inappropriate behavior included being highly impulsive, running away, and stealing. At times Robert would refuse to be cooperative with authority figures and would often challenge adults. Due to Robert’s volatile behavior, he was psychiatrically hospitalized on multiple occasions. He required physical restraint to keep him safe in addition to various psychotropic medications, which he would often refuse to take. My husband and I would receive phone calls from Robert’s school requesting that we pick him up because of his disruptive behavior. It was so frequent that we were often missing work and in danger of losing our jobs. Robert’s behavior was so out of control that he could no longer function in a school setting and he began receiving home instruction until an appropriate residential treatment facility could be located. My husband and I eventually received information about the Judge Rotenberg Center and began to do some research. We were able to locate a substantial amount of information including the various reward systems used, monitoring systems, educational software, and before and after video of JRC students. In addition, we were impressed and relieved that JRC minimized, and in most cases, discontinued the use of medication. This was extremely important to us as Robert had been on medication since the age of two. He was now twelve and it was obvious that the various forms of medication and treatments; including hospitalizations, counseling, and therapy were not effective in managing our son. In addition, Robert was not receiving an appropriate education and his behavioral issues were not allowing him to make any academic gains. Robert entered the Judge Rotenberg Center on November 15, 2002. Right away we were able to see a difference in our son. Within two months time he was no longer taking any medication and no longer experiencing any of the side effects caused by being overly medicated. Each time we spoke with him he sounded better and he would often comment that he felt better. We were impressed by the positive programming used to reinforce Robert’s appropriate behavior. Robert’s behavior program did (and still does) require the use of supplemental treatment, the aversive therapy. This was something that was not even discussed or presented as an option until all other possibilities had been exhausted. Though Robert had made some progress, it was not enough to ensure he was receiving the best possible education. Both my husband and I had the opportunity to experience the GED (Graduated Electronic Decelerator) and agreed that it was mild and felt similar to a sting. After careful consideration, we consented to the supplemental treatment knowing that we had explored all other possibilities and that there was no other option. Since Robert’s admission to JRC and with the implementation of the GED, Robert continues to make substantial progress. His math has improved from a second grade level to a fourth grade level and his reading has improved from a third grade level to a seventh grade level. He can be managed in a classroom and works hard on all of his assignments. We are especially appreciative of JRC for all they have done for Robert and know that he is getting a quality education. He continues to make progress everyday. All those involved in Robert’s life have seen the positive changes. My husband and I are now able to sleep at night knowing that Robert is safe. Sincerely, Marie and Robert Washington |
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To Whom It May Concern: This is in regards to my daughter, Erin, age 18, with a diagnosis of Autism. She started at the Judge Rotenberg Center on 11/3/05. While behavioral skin shock therapy may seem revolting, what is more repugnant, is the sight of my daughter banging her head into a wall with so much force as to break skin on her forehead and to cause the plaster in the walls to crack. She has slammed her head down so hard on a school desk that she cracked a front tooth. She has taken more blows to the head and limbs than a seasoned prizefighter. Years of medication, behavioral interventions, 1:1 class paras, and bus paras have failed to reduce her Self Injurious behaviors. It was a hard, heart wrenching decision to send my daughter to a residential school. But after being repeatedly called by her school (P77K@902), to come get her because she was out of control, I knew she needed more help than me or the school could give. The last draw was, when the Assistant Principal tried to get her taken, by ambulance, to the “G” building (psychiatric hospital), before I could get to the school to pick her up. When I arrived before that could occur, I was discouraged from sending her back to school. It is unfair to withhold an effective treatment because it involves certain aversives. Certainly, it is wrong to let a person harm them self when there are procedures that may effectively decrease or eliminate this behavior. My daughter is on her way to becoming drug free for the first time in almost 12 years, and soon, with the Department of Education and Board of Regents consent, free of health dangerous behaviors. In my daughter, there is a bright young lady, trapped inside that is begging to be free, but her behaviors will not allow it. Please give us the continued chance to carefully examine all methods of treatment and to follow our hearts, possibly saving our child’s life. Allowing her to laugh, enjoy, and participate in community activities. Sincerely,Patricia Crawford Brooklyn, NY |
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To Whom It May Concern: I am the mother of Antonio Manon, a student at the Judge Rotenberg Educational Center. He will be seventeen years old in May and has been at the Judge Rotenberg Educational Center for approximately three years. When Antonio lived at home, he would fight with people in the street. He threatened my life but he was so sick and did not know how to control himself. He would even be aggressive towards smaller children. I remember when people in my neighborhood wanted to fight me because they wanted me to hit Antonio and discipline him more harshly for his behavior, but I would not because I understood that he was sick. I did not know how to handle the situation. I was so sick with worry that I was in therapy because I did not know how to handle Antonio. I looked at three or four different places for Antonio and they were places that I did not want to place my son. I worked with my social worker to visit JRC and my prayers were answered when I found the Judge Rotenberg Educational Center. I had been praying for a school that would be able to help him. I was so sad to send Antonio to Massachusetts, I missed him so much. I know that this is the best place for Antonio. I am so glad that I made this decision to send him to JRC. I love my son and wanted to do what was best for him. Antonio has received GED treatment because his behavior was inappropriate. I have seen the change in him and it is for the best. To me, this is the best thing to happen to Antonio. Sometimes I do not want him around the neighborhood because of the other children/teens, but now he knows when they are behaving inappropriately to come home. He instead chooses to watch TV and go to movies. Right now, I am so proud of my son because he really acts like a gentleman. My daughter and my other son tease Antonio and say that Antonio talks like a “white guy” because he does not swear. The way that he expresses himself is very different than the other children/teens in this neighborhood. I want to take him home because his behavior is so good but I know that he needs to finish his education. I thank god that I found this school for my son. I prayed and they were answered. This is the best thing that could have happened. Sincerely, |
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To Whom It May Concern: Let me come directly to the point and tell you that if my son could no longer receive the temporary skin shock therapy, he may severely injure himself or even, God forbid, accidentally kill himself due to the likely escalation of his severe self-abusive behaviors that would most likely accompany the discontinuance of the temporary skin shock therapy. My sixteen year-old severely autistic son, Jonathan Bailey, is a full-time residential student at the Judge Rotenberg Educational Center in Canton, Massachusetts, and has been such since March 2005. From October of 1997 through March of 2005 Jonathan was a full-time residential student at the New England Center for Children in Southborough, Massachusetts. In early 2005 the faculty of the New England Center for Children informed me that my son’s self-abusive and aggressive behaviors had become so severe that faculty and staff at the school were no longer able to treat him through the use of traditional “positive reinforcement” therapy, and they stated that the use of aversive therapy might be the only thing that could help my son. Since the New England Center for Children did not use aversive therapy, they suggested transferring Jonathan to The Judge Rotenberg Educational Center. Of course, since I am a New York State resident, this new placement had to be approved by my local school district (Schenectady City School District) and, ultimately, the New York State Department of Education. So, the Special Education Department representative at the Schenectady City School District first looked for in-State facilities that might be appropriate for Jonathan and that would take him. No In-State facilities would take him. Then Out-of-State facilities were investigated. The only facility that was appropriate and that would take him was the Judge Rotenberg Education Center. In March of 2005 Jonathan started at the Judge Rotenberg Educational Center, with only the traditional “positive reinforcement” therapy being used for many months. Jonathan’s self-abusive and aggressive behaviors continued to escalate. In the Fall of 2005, with my written consent and authorization as Jonathan’s sole legal custodial parent the Judge Rotenberg Educational Center filed a Petition with the local courts seeking approval to use aversive therapy, specifically temporary skin shock therapy, on Jonathan. Upon filing the petition, Jonathan was given his own lawyer in Massachusetts in order to independently protect Jonathan’s rights, and the process went forward. After several months, the court approved the use of aversive therapy on Jonathan. So, in early 2006, the use of aversive therapy was started on Jonathan. As I visit Jonathan quite frequently, I can say with all honesty that within a couple of weeks of using the temporary skin shock therapy on Jonathan, Jonathan was like a new person. Gone were the bruises, cuts and swelled skin on his body from where he used to pound himself and bite himself; gone was the tensing up of his face that almost always signaled he was about to try to hurt himself; and gone was the constant wearing of a protective helmet for his head — he didn’t need it as much anymore. Although certainly not a person who could engage in a normal conversation like you or I, Jonathan is now able to verbally communicate his needs while remaining calm. He is able to go outside in the sun and enjoy being around other people, and other people enjoy being around him. He even smiles now, which is just great for a mom to see. The faculty tells me that pretty soon he will no longer require the helmet at all. So, while Jonathan will always need to be under constant supervision his entire life, it seems that his life may now be happier for him because he is able to have the temporary skin shock therapy. Please don’t take this therapy option away from him and other children like him. Lastly, let me just say that the temporary skin shock therapy is not some horrific electro shock therapy that goes into a person’s brain. That is a very common misconception. Until staff at the Judge Rotenberg Educational Center showed me the temporary skin shock device and how it worked, I had that misconception. One of the best things about the device is that no matter how long a staff member pushes on the button that triggers the temporary skin shock, the temporary skin shock only lasts a few seconds, as the length of time of the skin shock is controlled by a computer within the device. That really gives me peace of mind. There are digital monitors all over the school and at the residences, so any misuse of the device by a staff member can be caught, although I have never seen a staff member, in my opinion, misuse the device or mistreat any student. And believe me, if I thought for one second that my son was being abused or mistreated in any way, I would first call the police and Child Protective Services, and then I would personally go to the school and retrieve my son. But, to date, all is well and the Judge Rotenberg Center has thus far, treated by son very well, and the school itself has a very pleasant atmosphere, as do the residences. Thank you for your time and attention in this matter. Respectfully, |
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To Whom It May Concern: First I would like to introduce my son, Sean Watson. I feel privileged to be able to tell you why I strongly support the Judge Rotenberg Center. I will try to be brief but it will be hard letting several painful years into a couple of sheets of paper. I will start by saying my son’s problems started when he was two years of age. Sean was born July 8, 1970, however, language delay at two years, precipitated concern by his family who indicated that he “acted different”. Behaviors were characterized by severe tantrums, involving screaming and some destroying of property. His behaviors became so unmanageable that he was referred for an evaluation in 1974. Where it was determined that he suffered from Soto’s Syndrome, severe mental retardation and over activity. He was placed on psychotropic medication in 1975. Sean began attending special education classes. However, he continued to demonstrate severe receptive and expressive language delays. Communication was limited to gestures and echolalia. His vocabulary increased but he didn’t use it in communication. Tantrums and severe disruptive behaviors continued to be a problem and his psychotropic medications was increased. In 1975 Sean attended Charles Drew Day Care but only a for a few weeks, his behaviors were too disruptive for the class. 1976-1978 Sean attended the Shields Institute. A Psychiatric evaluation during that period indicated that he was primarily psychotic, possibly schizophrenic. 1979, Sean attended the Samuel Field Special Service School. No significant changes in his behaviors were reported during this period. 1983, Sean was placed at the adolescent Autistic program. His moods are lacked coupled with extremely sexually provocative behaviors; a different diagnosis of autism was made in 1984. Sean was not responsive to psychotropic medications. An additional treatment program was not effective for unspecified reason. His maladaptive behaviors escalated to the point where he could not be managed and posed a significant threat to the safety and well being of staff and other residents. 1987, Sean was referred to Behavior Research Institute in Providence Rhode Island. BRI by the New York State Department of Education. After a review of the court in New York, he was placed, but only after being rejected by 39 placements. After being placed at what’s now the Judge Rotenberg Educational Center, he was placed in an aversive technique program. His disruptive behaviors began to stabilize, the more stable his behaviors, the better his learning and understanding became. Sean continued to improve in all aspects of his program. He has considerable verbal skills, but wants to use them on being questioned. Before entering the Judge Rotenberg Educational Center in 1987, Sean was diagnosed as primarily psychotic possibly schizophrenic and was considered a candidate for an organization more suitable for dealing with seriously disturbed children, rather than an institute for retarded children. There is no evidence that any available psychotropic drugs would be of any benefit to Sean. He has benefited from highly structured behavior modification program which decreased his frequency of inappropriate behaviors including aggression, hitting, biting, kicking and other bizarre behaviors. This program at the Judge Rotenberg Educational Center provides an environment that fosters responsibility. Physical and medically well cared for. This is a major concern for any parent and/or family member. Stabilizing is the best part of this program, it helped to increase learning. Sincerely, |
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To Whom It May Concern: Before my son Christopher went to the Judge Rotenberg Center he could not control his behavior. He was unable to come home because it was not safe to transport him in the car. Christopher would become aggressive toward family members and staff. He was taking two different medications in an effort to control his behavior. The medication didn’t seem to work. He was still being aggressive. While taking these medications, Chris was kicked out of five treatment centers because they could not handle his dangerous behaviors or provide him with an education. Christopher has been at the Judge Rotenberg Center for five years and in that time he has been able to come off all medications and is now able to come home on weekends to spend time with family. Christopher is doing well in his academically and has made tremendous gains socially. Chris now loves to talk to people and help out in the class room. This is something he could not do five years ago due to his aggressive behaviors. Chris’ dangerous behaviors have dropped considerably and I don't have to worry half as much as I used to. JRC has helped my son Chris grow and develop well beyond any other school or treatment center could do it is a comfort to know my son is getting the help he needs to become a productive person. Sincerely, |
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To Whom It May Concern: My name is Marie Rogers; I am the Grandmother and legal guardian of Terrence Ellis. Terrence was diagnosed, at the age of three, with Autism and Mental Retardation and his IQ is in the severe to profound range of functioning. Terrence began receiving special education services at the age of three and attended PS188 in New York, from age 5 until his placement at Judge Rotenberg Center (JRC) on February 1, 1999 at the age of 12. While attending PS188, despite the use of medications, such as Mellaril, Clonidine, and Inipramine, Terrence required a one to one paraprofessional during the school day as well as a one to one transportation paraprofessional on the school bus. Due to Terrence’s range of functioning, his extremely limited vocabulary, and severe receptive difficulties, communication was frustrating and often led to uncontrollable temper tantrums, as well as aggressive and self injurious behaviors. Terrence has minimal frustration tolerance and when denied his own way, would often act out aggressively, especially towards his younger 7 year old brother, Frank. Before placement at JRC, while living at home, Terrence would target his brother with aggression, throw temper tantrums, which included banging his head, defecate on the floor, and eat uncontrollably, to the point I had to padlock the refrigerator/freezer and lock all food cabinets. Terrence would also run into dangerous areas/situations in and around our home. On arrival to JRC Terrence required frequent restraint to control his behaviors, which were interfering with his social/emotional and educational well-being. Once consents were signed, and approval received to begin level III treatment, the Graduated Electronic Decelerator (GED) was introduced into Terrence’s treatment program. Since the implementation of the GED into Terrence’s program, he has made great progress behaviorally, academically, and socially. Terrence is on a token system where he can earn tokens for appropriate behaviors and for task completion and can exchange the tokens for preferred rewards. Terrence has made excellent academic progress towards meeting his goals and objectives as listed in his Individualized Education Plan (IEP). Terrence is now able to work, semi-independently, on computer tasks, such as, Basic Skills, Alphabet Skills, Receptive Vocabulary, Learning to Count and Learning to Tell Time. Terrence also participates in the Special Olympics and is able to come home to New York, or stay with Frank and me at a hotel near JRC, for extended periods of time without staff supervision or exhibiting any inappropriate, uncontrollable behaviors. JRC, and the use of the GED, has significantly improved Terrence’s quality of life, as well as that of our entire family. I am supportive of JRC policies and practices and grateful for the life they have given to Terrence. Sincerely, |
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To Whom It May Concern: I am writing to you to tell you about a facility named Judge Rotenberg Center located in Canton, Mass. My son, Malcolm Harrison has been a student there since 1999. Malcolm is developmentally delayed. Before going to JRC Malcolm was placed in several schools in New York. One of those schools had only students that were placed in Special Education. Malcolm had all sorts of behavior problems such as running away, hitting others, breaking windows and numerous others types of behavior. I remember telling the doctors when he was younger to put Malcolm on the right medication, to stabilize him. That he should be home with his family. The doctors told me that I should place him in a facility, that he was getting older and stronger and that I would not be able to handle him. Not too long after that, Malcolm jumped out of a second story window in an attempt to go outside when I told him not to. Malcolm had no impulse control. Whatever his mind told him to do he did it. He also said that he heard voices in his head. Malcolm was on different medications like Ritalin and other physco therapy drugs. After being in the a mental hospital for over a year the New York Board of Education told me that they couldn’t find a school that would take Malcolm. It was because of his behaviors, age and IQ at the time. I gave permission for them to look out of state for a school. Thank God I did. They introduced me to The Judge Rotenberg Center. I love that school and the students are treated very well there. Malcolm is not on any drugs (only the ones for seizures). In the beginning Malcolm would call me and say he want to come home. That he didn’t like the school. But kids will say those things when they can’t get their way all the time. I am very aware of the aversives they use on the children. When you go to the school they explain the aversives they use. I, myself, have tried the Graduated Electronic Decelerator (GED). They use as a last resort for certain dangerous behaviors. There are people who want to stop the use of this device and to stop the New York Board of Education from sending our students to JRC. But I say “ JRC works and why fix something that’s not broke.” Unless a person has a child like Malcolm, you don’t know what we as parents go through. In some cases the systems failed our kids. They get lost in the shuffle. There are facilities that will drug our children. Making them into zombies to control them. Or abuse them physically and then say the child did it to themselves. One of the main reasons why I love JRC is because every one is being monitored, staff and students alike. Cameras are everywhere. And the fact that they don’t use meds to control the students. There is so much I could say that is positive about The Judge Rotenberg Center. I really wanted to make this letter brief but there is one more thing I would like to say. I really wish there was a school exactly like The Judge Rotenberg Center right here in New York State. If there is anything that you can do to make that happen I would really appreciate it. But for now, I feel that JRC should remain a school of choice for New York State children. Thank you for taking the time to read my letter. Sincerely, Loretta Harrison |
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To Whom It May Concern: My son Matthew Green is a 14 years old, 5’ 4 inches tall, 188 lbs. with Down Syndrome, Oppositional Defiant Behavior Disorder. He was raped in August 2003 while attending the Fresh Air Fund Summer Camp. My life has been pure hell since then! Matthew started hurting himself by sticking pencils in his belly button and other objects in different orifices of his body. He was very aggressive at home. He was hit by my mother and me and many times destroyed property. He was out of control. I had to have him admitted to Bellevue Hospital a couple of times. He was unmanageable. Matthew would come home from school and watch TV, play his play station game, eat until he regretted. He refused to take a shower or a bath. Recently, refused to go to school. I could not take care of him. He had to be put on different medications to include psychotropic medication. It didn’t work! His sleeping pattern was disrupted; he gained an enormous amount of weight. All the New York State Facilities, about 6 that I know of, reviewed my son’s packet, turned him down because he was too aggressive. Matthew arrived at JRC on March 1, 2006. He has improved immensely. Sincerely, |
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To Whom It May Concern: My son, Angel Gonzalez, 11 years old, is currently a student at JRC. Placing Angel on GED, especially at such a young age, was one of the most difficult decisions I have ever had to make, but it was by far the best decision for the safety and well-being of Angel. When Angel was at home, I had to be by his side all of the time. Angel was so self abusive, that he would repeatedly slap or bang his head, he would slam his jaw against his shoulders so hard, you would think he would have broke it off. He would kick himself, throw himself to the floor, and so on. I think you get the idea. If I had to let Angel’s hands go, I would have to resort to tying his sleeves together so the blows to his head were not as intense. Angel has been on GED for about two years. He no longer requires anyone to hold his hands, he no longer wear a helmet or special parts. He no longer requires arm splints. After Angel was placed on GED, it was the first time I had ever seen my son feed himself or drink without assistance. What a feeling of relief. Do you know what that feels like? Without JRC, I do not know where Angel would be right now, maybe dead. If JRC no longer exists, I do not know what I will do. In your considerations of JRC, please do not forget about my Angel and how well he has done. If you were in my shoes, without JRC my Angel may be, just that, an Angel. Thank you for your time, Sincerely, |
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To Whom It May Concern: My name is Willie Mae Bryant and I am writing to you concerning my seventeen year old granddaughter, Daniqua Bryant. She is a student at the Judge Rotenberg Center, a private school in Canton, Massachusetts. It is not practical and nearly impossible for me to tell my story in a few short sentences, however, I will be as brief as possible. Daniqua’s behavior problems began when she was young. Since the age of seven, my granddaughter has been in nine different facilities including three state hospitals. She has been prescribed more than thirty different psychotropic medications. I can’t even describe the numerous side effects she suffered from being medicated. In each of these facilities medication was always the answer; however, in Daniqua’s case, the medication failed to help. Daniqua’s behavior continued to worsen each year (as she got older). Prior to her enrollment at the Judge Rotenberg Center, she had broken both of her arms as result of her out of control behavior, jumped from a moving vehicle that was traveling between thirty-five and forty miles per hour (broken jaw was the result), and assaulted her teacher. Daniqua was making no progress in school and would often challenge her teachers. When home, Daniqua would be uncooperative and refuse to comply with any limits that were set. In August of 2004, Daniqua was admitted to Kids Peace. During her stay at Kids Peace, Daniqua succeeded in injuring a staff member after she fashioned a makeshift weapon. She had taken two metal balls and placed them inside of a sock, swinging it around at people. They soon realized they could not manage her. Since Daniqua was admitted to the Judge Rotenberg Center her progress has been steady. I am proud of her accomplishments. Her reading has improved and I finally feel like she is getting an education. I thank God each and every day for the help the Judge Rotenberg Center has given Daniqua. Every other placement simply wanted to sedate my granddaughter. Daniqua was on heavily medicated when she was admitted to JRC, including Thorazine. As I write this letter, Daniqua is not on any psychotropic medication. It is clear to me that she never benefited from it. In my opinion, prescribing a child various medications is similar to the other treatment options offered at JRC. The Graduated Electronic Decelerator (GED) used at JRC is not cruel or inhumane; rather, it’s an option to be explored when nothing else works. One could argue that sedating kids is cruel and abusive. Please note that my granddaughter does not require the use of the GED, though she is in need of a structured environment, which JRC has provided. Sincerely, |
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To Whom It May Concern: As a parent of a student, Richard Smith who has attended JRC since December 2004, I would like to share my family's experience with you. My son Richard, diagnosed with ADHD, prescribed greater than six psychotropic medications to regulate his behaviors that included property destruction, throwing a garbage can in front of a city bus loaded with passengers, stealing, lying, not concentrating, opening a school bus emergency door while in motion, and the list goes on of extremely dangerous behaviors that required immediate intervention. After an extensive and exhaustive stint of utilizing the community’s resources including weekly therapeutic services, specialized schools, strong medications, and the like, I made the decision to investigate a residential placement that would help Richard to be a vibrant and attributing citizen instead of what he was fast becoming. I chose JRC after extensive research of in-state schools that primarily medicate a child and house them in restrictive and sanitized dormitory placement. JRC has provided a beautiful home setting, nutritious vegetarian based diet, incentives like earning a shopping spree at a local mall, big rewards store, and many other rewards to encourage the students to achieve their behavioral and educational goals. My kid, although still trying to reach his goals has a solid A & B average on his report cards, earns the weekly privilege of ordering special dinners from a local restaurant, has earned a game boy advance, and is more respectful to family and peers. Certainly, this can only be attributed to the care and intense treatment plan developed by a staff of professionals with Richard's individual needs in mind. And certainly, there is no available school in New York offering comparable treatment for the city's most troubled youth. Also, there is a DVR system in place that offers a camera on students at the JRC residences and school and busses that staff cannot manipulate to avoid our children being abused by one another or staff. Other schools in NY cannot boast the same record. Yes, I understand that the adoptive mom of a fellow student, that by the way resides in the same residence as my son Richard is suing; however, I must wonder (as an adoptive mom myself) why would you leave your son at JRC if you feel so strongly. Fact! There is no other option that is as great as JRC. and Fact! If my son is returned to New York and returns to his behavioral issues that have proven dangerous to the general public (i.e. throwing a can in front of a city bus), I will be doing the suing. The list will be very long, when an effective treatment facility has been identified. Yes, my son Richard has the right to receive an education that is appropriate to his individual learning ability and style. It happens to take place in Canton, Massachusetts, it happens to take place at JRC. Sincerely, |
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To Whom It May Concern: When our son Christopher was 15-years-old he was diagnosed with multiple disabilities. His behavior was extremely violent and on one occasion he went after is sister with a crowbar. When Chris had these outbursts, it would take at least 10 people to contain him. He destroyed many things in our home and refused to go to school some days, missing 51 days of school in one year’s time. We had to contact the truancy officer constantly. Chris was very easily led by the wrong people and was greatly influenced by the local gangs. We lived in constant fear for our lives and for the life of our son. We filed a Person In Need of Supervision (PINS) Petition on Chris. The judge ordered him to attend Sagamore in Long Island. From previous experience with our other son, we were not expecting much. Needless to say, we were very disappointed with the care he received so we headed back to court. The judge then decided to place Chris at St. Mary’s, where he was diagnosed with Mental Retardation. Chris was placed on psychotropic medications and we were told by the Brentwood School District that Christopher would never be able to achieve anything more than a second grade reading level. They began looking for a school in New York and if that failed they were going to look out of state. There were no programs in the state of New York that could meet his needs. We then received information of the Judge Rotenberg Center, the only school that would try to take Chris off of all of his psychotropic medications while introducing behavior modification. When we visited the school, we were told about all aspects of their program, including the aversives. The aversive program was new to us but we understood that it was used as a last resort, when all else proved to be ineffective and could only be implemented with parental and court approval. We decided that JRC was the best option for Chris. Initially Chris did well at JRC. He began displaying major problematic behaviors a year into his stay. When we visited with Chris, he asked if could be on the Graduated Electronic Decelerator (GED) as he was having a difficult time controlling his behaviors. After discussing it and doing our research, I decided to try the localized skin shock device myself before allowing it to be used on our son. After realizing that the discomfort felt was minimal, much less that we had feared, we decided to consent to this form of treatment. Chris will be graduating this June and we could not be happier with his progress. He has excelled at JRC, is now considered high functioning and was able to do achieve all of this without the use of psychotropic medication. Both his math and reading skills have improved tremendously and our son now has a job! Chris feels good about himself and now has hopes and dreams for his future. Without JRC, this would not have been possible. We would like to thank JRC and it many staff members for giving us our son back! Sincerely, Cindy and Tony Adonetto |
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To Whom It May Concern: I am writing this letter about my son, Dhaakir Bailey, a student of The Judge Rotenberg Educational Center. Before Dhaakir was enrolled in this wonderful program, we had many difficult days. Dhaakir was very aggressive and would assault his classmates by striking then in the face, jumping on their backs, throwing things at them as well as trying to choke some of them. Similar behaviors were exhibited towards staff. Dhaakir has started a fire in a previous school, has broken other’s property, has thrown chairs and managed to flood the entire school. He has made suicidal threats, left school grounds and has stabbed himself with sharp objects. Noncompliance and disruptive behaviors were also occurring on a daily basis. Can you believe that all of this happened before the age of ten? Due to his problematic behaviors, I would receive calls on a daily basis to come and pick him up. As a result, I ended up losing my job. It was decided that my son would benefit from a residential program. I agreed with this but the challenge of finding an appropriate school was a difficult one- until I found The Judge Rotenberg Educational Center. My son has been at JRC for the last two years. My son is not on medication and continues to make behavioral progress on a daily basis. His academic achievements continue to amaze me! This program helped get his behaviors under control which is allowing him to excel academically. JRC keeps parents involved, despite the distance and has the most comprehensive video monitoring I have ever seen. It is difficult for me to be away from my son, but I am certain that he is safe and being well cared for by JRC’s many employees. My son might be lying in a psych hospital- overmedicated if I did not find JRC. If he continued down the path he was going, he may have ended up in jail or dead. If JRC is no longer an option for my child, I fear to think of what alternatives may be offered that we haven’t already tried. I refuse to let my little boy be one of NYC’s statistics! We all want the best for our children and as parents, we should have the right to decide what we think is best! If you have walked a mile in my shoes or have a child with similar disabilities you would understand the daily struggles that some parents face. We should have the right to choose what treatment works best for our children- not politicians that have no idea what it is like to care for these children! Sincerely, James Bailey |
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To Whom It May Concern: My son is Nevin Bernardo. His diagnosis is Autistic with severe Mental Retardation. The New York Public School, District 177Q gave up on Nevin despite an assigned one-on-one Para during school hours. His district was unable to keep my son contained or safe in the classroom setting. The New York School Bus Company who was assigned to transport Nevin to and from school refused to service my son despite the fact the school district assigned him a bus aide. To make things more frustrating for our family Nevin’s After School Program no longer wanted to accept him. Nevin was taking four medications and none of the prescribed meds helped to control or eliminate his inappropriate behaviors. The most problematic behaviors Nevin displayed were frequently spitting and removing his clothes. Both behaviors are unacceptable socially in public. Nevin quite often banged his own head, bit him self and smeared feces. We all agree these behaviors are very health dangerous. Nevin aggressed towards others with biting and pulling their hair. A few destructive behaviors I must mention are tear clothing and throw objects. Nevin also touched himself inappropriately in public and made many loud sounds. Thanks to Nevin’s admittance to Judge Rotenberg Center on July 5th, 2001 and the aversive treatment available in my son’s program. This behavior plan has stabilizes Nevin’s behaviors and socially he is more accepted. He does not take any medication and has lost weight (from 180 lbs. to 126 lbs.) He is doing extremely well at JRC. It is difficult to think what will happen if to Nevin without this program. Nelson & Sonia Bernardo |
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To Whom It May Concern: My son Duane is now twenty nine years old. On December 3, 1992, he became a student of the Behavioral Research Institute at Judge Rotenberg Center. I would like to introduce you to my son. Duane was diagnosed as autistic at the age of two and a half (2 ½ years). From that time, he attended the Kennedy Center at the Bronx Municipal Hospital. Up until puberty, Duane was not a problem. Sure he exhibited a lot of behavioral patterns of an autistic child but he was manageable. Duane attended special education classes in the Public School System. He went regularly on vacations to the West Indies, Canada, Disneyland, Washington and Virginia. Twice in 1988 and again in 1990, Duane completed the Walk America Walk-a-Thon for the March of Dimes children with birth defects. He raised over $300.00 each time. I never dreamed that Duane would not remain at home. His behavior was not that bad. I could cope with it. However, in late 1990, things began to change. I was told by the doctors that this would be expected since he was going through puberty and he would soon settle down again. Instead Duane’s behavior became increasingly aggressive. He even started to attack me; biting, butting, charging, scratching, aiming for your eyes at times as if he wanted to dig them out Duane had started taking medication when he was about 7 years old. This was because he had started banging his head. About two years later, he had also started biting his hand until a large callus developed. Over the years, he has been given first melloril then haldor. In 1989, he was put on Endoril. The doctor said both the previous drugs had serious long term effects if used for long periods. We were told that Endoril had no known side effects. Unlike the other medications, it did not act on the brain but merely controlled behavior through decreasing activity in the blood stream. However, Duane’s heartbeat and pressure constantly had to be monitored. Therefore I could not understand how it could have been considered a safe drug. Duane went from a trim size 29 than obese size 38 and all the time the doctors denied that the drug had anything to do with it! Moreover as he became larger, his behavior became more aggressive and of course an imposing force that could not be managed. He would explode unpredictably like a crazed bull for no reason. At school, he would have to he restrained and put in an isolation room. At home, he was breaking down doors. One time, he cut his head so badly when he butt the door and window that he had to receive 8 stitches on his forehead. People were afraid that he would do even more severe damage to himself and to others. The school bus refused to take him unless he had an escort to restrain him. Finally, the school could not deal with him and suggested that he be placed where he could receive the help he needed. At home, we could not even take Duane out anymore in fear of his sudden violent outbursts. All this time, his dosage was increasing; from 60 mg three times daily to 160 mg three times daily. The behavior was worsening! Every parent agonizes over his child. Duane is a sweet child when he is calm. It was not an easy decision to place him outside the home but it had to be done for his own safety. We visited several schools before we decided on Judge Rotenberg Center. At JRC, we saw the opportunity for Duane to come off drugs that were making him obese without helping his behavior. Moreover, our fear was that he would develop serious health problems. We are very please with Judge Rotenberg Center. Duane has been offered quality of living that he cannot get with medication. I understand you concern about the indiscriminate use of shock therapy and I am pleased to know you care. However, there are a small minority of people out there for whom medication just does not work. Before Duane received this treatment, he was presented in court and the judge and his lawyer had to agree this form of treatment, the amount and the duration. Therefore, the therapy is not being administered indiscriminately. Moreover, the argument that because averse conditioning should not be applied to mentally disabled if it is not applied to the general population does not make any sense to me. We do not overdrug the general population until they are drooling and incoherent! Yet this is being offered as a viable alternative! This seems to be a much worse fate. As a mother, I am appealing to you to please allow my child to continue to obtain a quality of life to which every human being is entitled and which he has received from the day he was admitted to Judge Rotenberg Center. I am therefore asking you to oppose any bill/policy which will prohibit JRC from using aversive procedures which is an effective part of my son’s treatment This will not only hurt my son but many children and young adults with behavioral problems. Perhaps a proposal can be put forward by the Senate to protect the rights of individuals who must have this form of treatment and visits can be made to the school to see how greatly these children and young adults’ lives have been improved and enhanced. Medications are not the answer for our children. Please help them to stay where they are safe and loved and given the best care possible. I wish to thank you for taking the time to read this letter and I hope you will understand how difficult it is for me to be constantly having to beg for mercy on behalf of my son but love him and want the best for him. A loving and Concerned Parent, |
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To Whom It May Concern: Please do not vote in favor of a policy/bill that would prohibit the use of aversives in programs serving children with disabilities in private, out of state schools approved for placement of New York students. If the policy/bill passes, JRC’s treatment effectiveness would be severely curtailed and JRC will be severely hurt. It would directly and negatively affect those students whose program at JRC includes the use of aversive procedure, such as the GED procedure. If they have to remove this treatment from those students, many of them will regress badly and others will be unable to continue to make the progress that they are currently making. My son, Damian is a student at JRC. He is making much progress behaviorally, academically and socially. He is no longer taking any antidepressant or any antipsychotic medications. He is responding well to a positive reinforcement behavioral treatment program. The staff at JRC are highly trained and very professional. The administration, the program director, the clinician, the case manager, the teacher and the classroom aides all work together in developing a specialized program to best meet each student’s individual needs. JRC works with children and young adults who have serious behavioral issues. Most of their students have been rejected by their own school districts. The way the staff at JRC deals with these children and young adults is amazing. JRC constantly monitors their behavioral and academic progress and fine tunes their programs accordingly. It is my impression from the literature I have read about aversives and the fashion in which my own child has been treated at the school, JRC makes every attempt to put a student on a positive reinforcement behavioral treatment program as the first priority. In the case of my own son, Damian, aversives were not even a consideration to modify his behavior. In fact, JRC told me that after reviewing Damian’s file and having met him personally, they were sure they would be able to modify his behavior by using positive reinforcement and there would be no need for the use of aversives. When it is decided that a student requires the use of aversives, it is decided when all other options are exhausted. These students are treated humanely and with respect. When I was visiting Damian at his residence, the Norton House, during Thanksgiving vacation 2004, I noticed one of the JRC staff going around to certain students and removing straps from their legs and arms and massaging the areas before putting the straps back on. I was told these were the GED devices and a staff person routinely removed the straps, checked and massaged the area and put them back on the student. On two occasions I heard a staff person give verbal instructions to a student to do something and when the student didn’t respond the first time, he was told again before he did as requested. At no time did I witness the GED being used. What I did witness was a staff person in a firm, moderately toned voice making demands on a student and when the student didn’t respond, make the same demand in the same voice. In each case the student was treated with respect and the student followed the instructions of the staff person. I feel that I am fortunate to have found a school such as JRC for placement for Damian. I feel confident when I go to sleep at night that my son is taking care of and is receiving an education. It is reassuring knowing that his needs are being met and he is making progress. Dr. Israel should be commended and not criticized and attacked for his efforts in helping students who have serious behavioral issues. The GED that Dr. Israel developed in the early 1990’s is only used as a last resort to help students who desperately need help to control their behavior. Parental approval and a court order are required before it can be used. In today’s culture, the alternative is medication. My son, Damian, was prescribed antidepressants, at first by our family physician and when they didn’t do the job, a psychiatrist prescribed psychotropic medication, which made Damian’s behavior even worse. These medications made Damian drowsy and his mind cloudy. His face had a glossy look and you could tell he was “drugged up”. Most of his school day was spent sleeping. He was awakened when it was time for his next dosage, then he fell asleep again. Damian was at school, but Damian wasn’t receiving an education. After a few weeks, this cocktail of drugs Damian was on seemed to lose its effectiveness and increasing the dosage didn’t seem to help. When Damian wasn’t sleeping, his behavior was out of control, for example, he was throwing desks around the classroom, hitting and kicking staff, running away from staff in side the school building and running around outside the school building on school grounds. Finally, in April 2004, he was expelled form school. Damian was admitted to JRC on September 17, 2004. He remained on his medication for about 3 months so the school could observe his behavior. In late September, the school started to decrease his dosages until in mid-January 2005, Damian was drug free. Damian still has ups and downs in his behavior, but very mild in comparison to the period of time he was taking medication. His mind is a lot more clear now, he is learning academics, he is learning to socialize more and his rate of inappropriate behaviors is decreasing. JRC has made this possible. As a parent, I implore you to vote against and policy/bill that would ban aversives and allow JRC to administer aversives to their students with parental consent and court approval. All the parents a choice in determining the best methods to be used in helping their children control their behaviors. If a certain mother feels that GED isn’t appropriate for her child that is her choice. However, please don’t deprive the other parents who have made the choice and are seeing positive results the GED is achieving for their children. Also, if this policy/bill passes, my son, Damian, could be severely and negatively affected in two ways, even though he is not currently receiving any supplementary aversives. First, it will require that JRC allocate more of their staff members to the care of the students who have lost the benefit of aversives. This will diminish the staff resources that can be provided to the other students, including Damian. Second, it will cause JRC to be unable to serve many students. This will require that they downsize their school. The result will be a substantially smaller school that will not be able to provide as many services that they currently to both parents and students. In conclusion, I urge you to vote against the proposed policy/bill and to influence your fellow members to do the same. Please vote for the right of parents to choose the most effective treatment for their child. Sincerely, Charles
Bryant |
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To Whom It May Concern: LIGHT AT THE END OF THE TUNNEL My daughter Esther is diagnosed with ADHD and Learning Disabilities. While attending the Board of Education schools, she never excelled academically. She was a 14 years old with a second grade reading and a fourth grade math level. Although she seemed to make friends easily, Esther’s social skills were limited. She would become aggressive when frustrated or use her size to intimidate younger peers. Esther’s behavior became self-destructive. I could barely keep up with her. She would disappear from the house for hours, and then for days. It was apparent that she needed more supervision than I could provide. Esther has been on many different medications throughout the years, which never modified her behaviors. I could not take on any commitment for myself or my other children because I would have to be available for any sudden emergency that would occur because of Esther. The Judge Rotenberg Center is a gift from divine powers. JRC has given Esther a chance to have a quality life. They do not utilize psychotropic medication to deal with the behaviors while educating her. I have the opportunity to see how my child is doing at all times because they implement a 24 hour digital cameral system. Esther has been there for four months and she has lost 40 lbs, which is the result of the vegan diet, as well as the discontinuation of medications. She is doing extremely well and I am expecting her to continue to make progress. Brenda Brazell |
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To Whom It May Concern: I am the parent of a child residing at the Judge Rotenberg Center in Canton, Massachusetts. My daughter, Brittany has been at JRC for almost a year now. She has severe emotional and behavioral issues which made it impossible for her to remain at home. She became a danger to herself, and my family and I went through seven years of hell trying to find help for her. You name it, I did it. Unfortunately, being a resident of New York City, there aren't many options. Only after numerous placements, which included group homes, state schools, and psychiatric hospitals, was I finally told about JRC. I had actually tried to get a loan for $50,000.00 for a one-year payment, to get Brittany in a behavior modification program that is only offered in Utah, Puerto Rico and Montana I believe it is. I was willing to do whatever I had to in order to help my daughter. I was only successful in getting her moved from school to school and from hospital to hospital. We have seen more psychologists and psychiatrists than I can count. I watched my daughter get so drugged up in these hospitals, that I didn't even recognize her. And you know what? Those drugs didn't do a thing for her. She still had her emotional outbursts and really only thought about how she could get away. Also, she is now diabetic, and studies are showing that these mood altering drugs are causing diabetes in children. Hospitals are the only locked facilities available in New York State for children with problems. All other placements are in open-door facilities which of course, was like putting a kid in a candy shop when it came to Brittany. Every group home or school that she was sent to was nothing more than a momentary stop-over for her, for she ran away from all of them. At one point, she was missing for seven weeks - in the dead of winter - from a school upstate. I was out of my mind with worry and was even setting up one of those spots on ABC where they show a picture of a missing child and ask have you seen so and so. Luckily, I got her back alive and well. However, it didn't solve her problems. She can't function in a "normal" environment. I'm hoping one day she might be able to, for she's not mentally retarded or autistic as some of those at JRC are, but I firmly believe that she needs a behavioral modification program like JRC's to help her learn how to function in society. I have seen my daughter out of control and have to be taken down by 5 police officers, so I know how she can get when she's being aggressive towards others. JRC believes in little to no drugs when it comes to kids like mine. The first thing they did when Brittany got there was to start weaning her off the six or seven different psychotropic drugs she was on. She has been completely off them for about 6 months now and looks and sounds so much better. I have definitely seen progress since she's been there. But for every 3 steps forward, unfortunately, she takes 2 steps back. It's a very slow process, but I definitely see and hear a change, which I completely credit to JRC and their staff. Brittany has been actually showing feelings of remorse and has expressed regret for her past. This is something that I never heard from her before. She told me that even when she has to be restrained, which is always because of her either trying to hurt someone else or herself, that she's grateful for the fact that she's not drugged up. For this gives her the opportunity to calm herself down on her own and to think about what she's done to cause her to have to be restrained. No school or hospital in New York State, that I know, affords that opportunity to children like mine. They are either drugged up in a hospital, or allowed to just take off and disappear from schools they are put in. So far she has not had to have the aversive treatment; however, because of a cluster of weeks in the recent past, where she was physically lashing out at both students and staff, and threatening to harm herself, I gave JRC permission to petition the court for her to have that treatment. Brittany is fully aware of this, and does understand that she has pushed the envelope to this point. I don't feel that this treatment is abusive or that it has any long-term harmful effects. I do believe that it is an effective means of behavior modification, especially when you are dealing with someone who is out of control and will hurt either themselves or someone else. I find it very unfortunate that Ms. Nicholson had to turn this into such a big circus. My understanding is that once she said to stop the aversive treatment, it was. I can't help but wonder if she's now just seeing dollar signs by launching her lawsuit. She has said herself that her son is still in residence at JRC because she can't find another facility for him. To me that only further reinforces how much we, here in New York City, need JRC. I am writing to you today to ask that you not make any rash decisions for the future of all of these children that are at JRC. There are no alternative programs available for us. Right now all I know is I am very afraid for my daughter and my family, if we lose JRC as an option. I can honestly say that I think this would be a death sentence for Brittany. Thank you very much for reading this. Sincerely, |
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To Whom It May Concern: My daughter is diagnosed with Mental Retardation and was placed the Judge Rotenberg Center three years ago. At home it was very difficult living with her as she was out of control and irresponsible, putting herself in dangerous and life threatening situations by running away or disappearing for weeks at a time, until someone made a call to say that she was in their home. She was truant from school, breaking up and destroying furniture in the home, and also very non-compliant. The New York City school was not able to help her as she required supervision 24 hours a day. Since coming to the Judge Rotenberg Center, she has changed a whole lot. She has blossomed into someone who is clam, able to concentrate on school work, happy to be at home, and listens to others. Her academic grades are better than in New York City public school and I can sleep at night knowing that she is being supervised and not running around the streets. Thank God for the Judge Rotenberg Center; my daughter has become a better person. Janice Butler |
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To Whom It May Concern: I am writing this letter because my mind cannot rest until I submit my comments about JRC. My daughter is Crystal Cofield and she is currently a student at JRC. For the first time since Crystal was born, everyone in the house sleeps at night knowing that Crystal is well taken care of. My daughter was considered a danger to herself and others prior to attending JRC. She was on seven medications, and the only thing they did was impair her vision and almost cause her to become diabetic due to the weight gain. Crystal will be 19 in May, and for the first time she is showing progress that no other school has ever been able attain. Yes, the skin shock therapy is absolutely harsh, and the decision to sign for this treatment was one of the hardest choices I ever had to make; however, she was removed from our household for her safety. Crystal has no fear of anything and the only one she listens to is me; however, since I cannot and will not be around her for the rest of her life, I decided to give JRC the chance to help her. Society does not care about my child or other children like her. For 17 years, I received no help from any agencies, especially OMH and OMRDD, who couldn't say anything except let me know she did not fall in their category for help. All the doctors did was use up her Medicaid for their money-making purposes. Now, after all these years of nobody giving a damn about what we went through, as a family, everyone wants to jump on the bandwagon and say that we, as parents, are treating our children inhumanely. Antwone's mother has every right to disagree with her child's treatment plan. As Crystal's mother, I disagreed with the treatment plan she had in another residential school; HOWEVER, I DID NOT GET A LAWYER, I GOT MY DAUGHTER OUT BY GOING AND PICKING HER UP AND BRINGING HER HOME! Crystal loves JRC. When she comes home (which is often) she wants to know "When am I going home (meaning JRC)?” For the first time in her life, she has friends; not only staff but, other students as well. She feels safe there and she participates in more activities there than at home. Everywhere I turn, I find people who don't know my child or care about her, trying to dictate to us, as parents, what's best for our children. JRC is best for my child and they have proven it. We, as parents, have taken the necessary steps to help our children. All of the reporters and politicians should mind their own business, or better yet, do something about all the children that are being neglected and abused by their families at home. At least I know my child is doing fine. Susan Handon - Mother of
Crystal Cofield |
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To Whom It May Concern: I am Ana Carvajal, the mother of Noel Cortes. During the early 1990’s, Noel started primary school in the Bronx, attending special classes. Later on I started receiving letters and phone calls from teachers and school administrators stating my son’s behavior was disruptive and aggressive toward classmates. I was constantly leaving work to go to school to pick up Noel. I was afraid of losing my job. School administrators recommended Noel to be examined and evaluated by school psychiatrists; their findings conclude that my son has Attention Deficit Disorder. He was placed on medication (Ritalin, then Tegritol) and continued attending special education classes; however, the medication had side effects, such as drowsiness and dizziness. It was also detrimental to his learning process. In other words, Noel went everyday to school to sleep in class most of the time. Years passed and Noel was socially promoted from one grade to the next without learning anything. By the time he reached Junior High School his academic levels were still at second grade. As Noel reached puberty, he began to have epilepsy seizures and manic behavior episodes in school; additional medication was prescribed. Due to his behavior Noel ended up at Four Winds Hospital. He was there for seven months. In the meantime, with the help of a social worker, the Board of Education placed my son at the Judge Rotenberg Center in Canton, Massachusetts. For the past four years, my son has learned a great deal. I never dreamed that he would be able to pass his classes and learn to read and write. I am very pleased with the job well done by the staff at the Judge Rotenberg Center. Sincerely, |
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To Whom It May Concern: As a parent, there are times that we need to make difficult decisions that will benefit and protect the well being of our children. Unfortunately, a year ago, my family and I were faced with the emotional and heart-breaking decision of sending my 15 year old daughter, Vania Lourdes, to live in a residential treatment facility. Vania, has a long history of emotional and learning challenges, which began when she was 5 years old. She was articulate verbally; however, she could not read. This was very frustrating for her and us. The beginning of a road ensued and 10 years later we were faced with having to send her away. This was an extremely difficult situation for our family to deal with. My daughters and I never lived apart, and we were dealt with the reality that Vania would have to leave home. Separating for us was difficult, since her father died when she was 4 years old and her sister 9 years old. At age 15 she was in the eighth grade, with a 5th grade reading level. Aside from her lack of academic progress she was a very angry young lady. She was diagnosed with Major Depression and other Psychiatric Diagnosis and refused to take "those medicines that can control me". Between the New York City Board of Education, the Medical Community, and our family we had to find somewhere that would know how to deal with a special, intelligent young woman that was also experiencing extreme academic and emotional distress. Thank God, a Social Worker working with us told us about the Judge Rotenberg Educational Center. I immediately researched JRC and other in- state residential treatment facilities. We also began the application process requesting funding from the Commission on Special Education of New York City for the higher level of care Vania needed. Part of this was to "apply" to three in-state schools before we could apply out-of-state. Two in-state schools refused her without an interview, their reply was that they could not accept her based on the "educational and IEP packet". One other school, in Westchester County, granted her an interview: however, after meeting her they stated that she was a flight risk and they could not guarantee her safety. JRC staff came to our home after receiving her packet. They were very impressed by her, optimistic about her future, and stated that they could help her academically, socially, and emotionally. I felt a sense of great relief, finally someone understood that my child was special, articulate, and intelligent and that she was capable of being a productive member of society. Soon, after an official interview, a school visit, and completion of the application criteria she was accepted. Today, she is a much happier young woman. I see that her self-esteem has increased, she has a tenth grade reading level, and has a more positive out look on life. It has been a long time since I saw my daughter without the defensive, aggressive, and self destructive behavior that was controlling her life as well as ours. During home visits she is much more responsible and comments, "Although I do not like being away from home, I am glad I am at JRC because they helped me. I feel safe there, and I am doing much better in school. I am also, learning how to take care of myself". Needless to say, I am overwhelmed by joy, peace, and tranquility that she is achieving academically, and has the resources and tools to be able to live independently, work, and go to college. She also requested an IEP Review after meeting with the Educational Department at JRC so that she can take the New York Sate Regents. Previously, she was exempt due to her poor academic performance. She also reads more, writes poetry, and has A's and B's on her report card. If JRC, becomes disqualified as an approved out of state school we will loose funding from the Department of Education in New York. This would be a tragedy. Where will my daughter go to school and receive the outstanding support that has brought her life full circle? She is proud of where she lives, has made many friends, is learning comradeship, and, at times, cannot wait to return to JRC during home visits that are longer than a week. Last, but not least, I am a registered voter. I will remember the Politicians responsible for the financial burden that is being unnecessarily placed on JRC. The accusations by a Suffolk County resident, her son, and their ambulance-chasing lawyer. That she did not understand what she was signing upon admission to JRC is ludicrous. Upon thorough evaluations, her son was found to require skin shock therapy and she agreed. She is motivated by greed and her ambulance-chasing lawyer. JRC and its staff have a rigorous, informational process for all prospective students and their families. They continuously discuss their treatments and behavioral modification programs. The families are more than aware of what goes on and are in agreement with the policies and procedures. In closing, I am a parent of a child with special needs. I have the right to choose the appropriate placement that supports my child's best interest. She is proof that JRC has effective therapies and behavioral programs that assist these students. In New York State we do not have a single educational and behavioral facility equipped to deal with such circumstances. I oppose the proposal by certain politicians that are swayed by inflammatory media reports. They need to become objective, educated, and informed about the Judge Rotenberg Educational Center. Keep JRC an approved school. Respectfully, Elizabeth Ortiz (Vania I. Cruz's Mother) |
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To Whom It May Concern: We are writing this letter because we fear for our son's future. Diego has been a student at the Judge Rotenberg Educational Center in Canton, MA for over a year. The progress that he has made in the short time since his admission has amazed the both of us. Before our son began kindergarten, we had him evaluated as he seemed to be developing slower than other family members. He was sent to a special preschool which seemed to help. By the time he entered into kindergarten, he was prescribed psychotropic medication. As he continued through school, he began having side effects from the medication and by the time he reached first grade, he could no longer perform. I requested a change of program and was sent to deal with another district. They also failed my son and his behaviors deteriorated at home. Prior to JRC, Diego was very aggressive towards his family, peers, staff at school as well as strangers in the community. We, as his family were in fear of his behaviors and physically suffered from his aggression. Diego was a danger to others as well as himself. He would throw himself to the floor and runaway from home- please keep in mind he had no safety awareness whatsoever. He did not know how to cross the street and did not understand the concept of what a stranger was or the harm they may do. Two hospitalizations later, we were looking into the option of residential placement. The programs in NY had nothing to offer our son and his many needs. After visiting the Judge Rotenberg Educational Center, we knew this was the one program that was going to try to take him off the medications that has hindered his progress for years. We received a complete and well explained introduction to JRC's training programs, we were shown all around the school and they let us make our own mind about the program. For that, we are thankful and we are also thankful for all of JRC's staff who have worked with our son. Today Diego is medication free. His aggressive behaviors have come down drastically and he has lost all of the weight he gained from being on all of the medications. We waited four long years for NY to find a solution for our son and during this time precious time was lost! We are not sure where we would be today if it wasn't for JRC. We believe JRC works for children with disabilities because Diego is living proof. We also we have an adult son who suffers from autistic syndromes and didn't have the opportunity that Diego had to go JRC and overcome this problems. We don't want the same thing to happen to Diego. We are saddened that JRC may not be an option for my son in the future. What will happen to all of the progress that he has made? Can you promise to provide him with an educational placement that will continue to teach him without resorting back to medications? This has been a long and difficult journey for us as a family but in the end it was worth it because we have found a placement that is able to keep our son safe while teaching him the skills to survive in today's society- without the use of medications. Why would anyone want to take that away? Hernan and Alba DelaRosa |